From the Network

NF Network Annual Appeal

With two weeks left until the end of the year, the NF Network wants to thank all of those who have shared, supported, and donated to our annual appeal and helped us reach the halfway point of our goal!

NFRP Presents FY 2018 New Investigator Award Recipients

Since 1996, the NF Network has played a vital role in Washington, D.C., as we advocate for securing federal funding for NF research.

UMASS NF1 Gene Therapy Project

Miguel Sena-Esteves, PhD, a researcher at UMASS Medical School, tells the NF Network and NF Northeast about his exciting new project to develop gene therapies for NF1.

Summer of Giving 2019

Support the NF Network and the 1,600 new NF families by creating Facebook fundraisers!

Meet Danielle Our Social Media & Graphic Design Coordinator

Danielle recently celebrated a year working at the NF Network!

NF Network Announces Partnership with SpringWorks Therapeutics

Treatment of patients with NF1-associated inoperable plexiform neurofibromas

A Consumer’s Perspective: “Headed in the Right Direction…” 

My name is Kim Bischoff. I’m the Executive Director of the Neurofibromatosis Network. But most importantly, I’m the mother of Jennifer, who is 34 years old, and she has neurofibromatosis type one. 

Las Vegas’ 8th Annual NF Hope® Concert

Las Vegas’ most notable headliners will come together under one roof for Las Vegas’ eighth annual NF Hope® Concert.

New to Our Team

Join us in welcoming Breanna to the NF Network!

Send us your personal NF story, we'll deliver to Congress

On February 12 and 13, NF advocates will be storming the halls of Congress to educate its 535 members about neurofibromatosis and ask for their support to fund vital NF research.

Newman's Own Holiday Challenge

The NF Network has teamed up with the Newman's Own Foundation for a $500,000 holiday challenge.

Join us at Las Vegas’ 7th Annual NF Hope® Concert!

In less than a month, neurofibromatosis families and friends from across the country will gather for the 7th annual NF Hope Concert, Sunday, October 22 at The Palazzo in Las Vegas, Nevada.

NF Network Supports the UW-Madison NF1 Swine Project

We are optimistic that this research will speed up the development of NF 1 therapies.

The word is neurofibromatosis

May is Neurofibromatosis Awareness Month! Spread awareness by joining the #TheWordIs campaign.

2017 NF research funding secured

Congratulations to all in the NF community for this achievement!

My NF compass: Aunt Flora

Cheri Stewart, president of the Neurofibromatosis Network, shares inspirational comments.

2017 NF Advocacy Program

The NF Network Advocacy Program stomped the halls of congress February 5 through 7.

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