Department of Genetics Birmingham , AL
Phone: 205-934-4983
Location: Kaul Human Genetics Building, Suite 230 720 20th Street South Birmingham, Alabama 35294-0024
Website: University of Alabama at Birmingham
Physicians: Clinic Director: Rebecca Brown, MD, PhD
Specialty: NF1, NF2, Schwannomatosis, Adults, Children
Facility Type: Multi-Disciplinary, NF Consortium
Neurocutaneous Disorders Clinic
Phone: 608-263-6420
Location: 1675 Highland Avenue, Madison, WI 53792
Website: American Family Children’s Hospital (UW-Health)
Physicians: Clinic Director: Nicholas Pytel, DO
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Pediatric and Adult up to 25 years.
Neuro-Oncology Clinic
Phone: 414-805-0505
Location: 8800 W. Doyne Ave, Milwaukee, WI 53226
Website: Froedtert and Medical College of WI Cancer Center
Physicians: Clinic Director: Jennifer Connelly, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adult
NF/RASopathy Center
Phone: 414-266-3347
Location: Craig Yabuki Tower, 8915 W Connell Ct, Milwaukee, WI 53226
Website: Children’s Wisconsin
Physicians: Clinic Director: Donald Basel, MD, MBBCh, BSc Clinic Co-Director: Leah Lalor, MD
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Pediatric through 22 years old.
Van Dyke Cancer Center
Phone: 414-298-7250
Location: 2350 N Lake Dr. Ste G01 Csm Cancer Center-milwaukee, Milwaukee, WI 53211-4528
Website: Ascension Columbia St. Mary's Milwaukee
Physicians: Clinic Director: Hendrikus Krouwer, MD
Specialty: NF1, NF2, Schwannamatosis, Adults, Children
Facility Type:
Alvord Brain Tumor Center
Phone: 206-598-2282
Location: Main Hospital, 1959 NE Pacific St, Seattle, WA 98195
Website: University of Washington
Physicians: Clinic Director: Lynne P. Taylor, M.D.,(NOTE: treat patients 21 years of age and over only)
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults
Ivy Center for Advanced Brain Tumor Treatment/Swedish Neurofibromatosis Clinic
Phone: 206-320-2300
Location: 550 17th Ave, Suite 540, James Tower, Seattle, Washington, 98122
Website: Swedish Medical Center
Physicians: Clinic Director: Alipi Bonm, MD, PhD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults
Seattle Children's Neurology Neurofibromatosis Program
Phone: 206-987-2078
Location: 4800 Sand Point Way NE, Seattle, WA 98105
Website: Seattle Children's Hospital
Physicians: Clinic Director: Aimee Sato, MD Clinic Co-Director: Lauren Levesque, ARNP
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult up to 21 years.
VCU Pediatric NF Clinic
Phone: 804-628-5357
Location: 1000 E. Broad Street, Richmond, VA 23219
Website: Virginia Commonwealth University
Physicians: Clinic Director: Christopher Park, MD
Specialty: NF1, NF2
Facility Type: Pediatric and Adult up to 22 years.
For information, please contact:
NF Northeast
9 Bedford Street
Burlington, MA 01803
781.272.9936
Neurofibromatosis Clinic
Phone: 801-213-3599 (Scheduling) 801-585-5522 (Inquiries)
Location: 81 N Mario Capecchi Dr, Salt Lake City, UT 84113
Website: University of Utah
Physicians: Clinic Director: David H. Viskochil, MD, PhD Clinic Co-Director: Vanina Taliercio, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, NF Consortium, Pediatric and Adult
Phone: (800) 926-8273
Location:
Website: University of California San Diego (UCSD) Health
Physicians:
Specialty: NF1, NF2, Schwannomas
Facility Type: Children, Adults, Multi-Disciplinary
Neurofibroma and Operative Plexiform Removal
Phone: 469-598-2400
Location: 3108 Midway Rd., Suite 102, Plano, TX 75093
Website: Vida Bela Plastic Surgery
Physicians: Chelsea Snider, MD, Director of Vida Bela Plastic Surgery | Plastic, Reconstructive, & Craniofacial Surgery | Email: info@vidabelaplasticsurgery.com
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric, Adults
Harold C. Simmons Comprehensive Cancer Center
Phone: 214-456-2382 (Pediatrics) or 214-645-4673 (Adults)
Location: Pediatric: 1935 Medical District Drive, Dallas, TX 75235 Adult: 5323 Harry Hines Blvd, Dallas, TX 75390
Website: University of Texas Southwestern Medical Center (UT Southwestern)
Physicians: Clinic Director: Laura Klesse, MD, PhD Clinic Co-Director: Justin Jordan, M.D.
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Pediatric and Adult
Pediatric Neurofibromatosis Clinic
Phone: 855-690-2446 (Inquiries) 888-996-0268 (Scheduling)
Location: 1515 Holcombe Blvd., Houston, TX 77030
Website: University of Texas M.D. Anderson Cancer Center
Physicians: Clinic Director: John Slopis, MD, MPH Clinic Co-Director: Gregory Friedman, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neurofibromatosis Clinic at Texas Children's Hospital
Phone: 832-822-2100
Location: 6701 Fannin St. 16th floor, Houston, TX 77030
Website: Texas Children’s Hospital
Physicians: Clinic Director: Surya Rednam, MD
Specialty: NF1
Facility Type: Pediatric
UT Health Austin Pediatric Neurosciences at Dell Children's
Phone: 512-628-1855
Location: 4910 Mueller Blvd, Suite 300, Austin, TX 78723
Website: Dell Children’s Medical Center
Physicians: Clinic Director: Chelsey Ortman, MD Clinic Co-Director: Virginia Harrod, MD, PhD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neurofibromatosis Clinic
Phone: 682-885-2500
Location: 1500 Cooper Street, Fort Worth, Texas 76104
Website: Cook Children's Health Care System
Physicians: Jeffery C. Murray, MD and Rachelle Herring, MD
Specialty: NF1, NF2
Facility Type: Pediatric
Neurofibroma and Operative Plexiform Removal Division of Adult Plastic Surgery, Department of Surgery
Phone: 713-798-6141
Location: 1977 Butler Blvd, Suite E6.100, Houston, Texas, 77030
Website: Baylor College of Medicine
Physicians: Sebastian Winocour, MD, MSc, FACS, Baylor College of Medicine, Division of Plastic Surgery
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults
Vanderbilt-Ingram Cancer Center Neurofibromatosis Clinic
Phone: 615-343-0927
Location: 1500 21st Avenue South, Suite 2500, Nashville, TN 37212
Website: Vanderbilt University Medical Center (VUMC)
Physicians: Clinic Director: Alex Mohler Clinic Co-Director: Paul Moots, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neurofibromatosis Clinic
Phone: 901-287-6472 (Scheduling) 901-287-5437 (Inquiries)
Location: 51 N. Dunlap St., Suite 235, Memphis, TN, 38105
Website: Le Bonheur Children’s Hospital and St. Jude Children’s Research Hospital (SJCRH)
Physicians: Clinic Director: Eniko K. Pivnick, MD (Le Bonheur Children's Hospital) Clinic Co-Director: Melissa Perrino, MD (St. Jude Children's Research Hospital (SJCRH))
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Pediatric Neurosurgery
Phone: 605-312-8500
Location: 1210 W. 18th Street, Suite 100, Sioux Falls, SD 57104
Website: Sanford Health
Physicians: Eric Trumble, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children, Adults
Comprehensive Neurocutaneous Clinic
Phone: 864-455-8898
Location: BILO Charities Children's Cancer Center, 900 W Faris Rd, Floor 2, Greenville, SC, 29605
Website: PrismaHealth Upstate
Physicians: Clinic Director: Nichole Bryant, MD Clinic Co.Director: Sunjay Nunley, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Pediatric Multidisciplinary Neurofibromatosis Clinic
Phone: 717-531-6012
Location: 500 University Drive, Hershey, PA 17033
Website: Hershey Medical Center Pennsylvania State University
Physicians: Clinic Director: Nidhi Shah, DO
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric through 23 years.
Neurosurgery
Phone: 570-271-6590 (Pediatric) 570-271-6437 (Neurosurgery Department)
Location: 100 North Academy Avenue, Danville, PA 17822
Website: Geisinger Medical Center - Neurosurgery
Physicians: Cameron J. Brimley, MD (Pediatric)
Specialty: NF1, NF2
Facility Type: Pediatric, Adult, Multi-Disciplinary
Neurofibromatosis Clinic
Phone: 412-692-5325
Location: 4401 Penn Avenue, Pittsburgh, PA 15224
Website: Children's Hospital of Pittsburgh of UPMC
Physicians: Clinic Co-Director: Kathy Gardner, MD Clinic Co-Director: Jenna Gaesser, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children
University of Pennsylvania Neurofibromatosis Clinic
Phone: 215-590-7012
Location: 3501 Civic Center Blvd, Philadelphia, PA 19104
Website: Children's Hospital of Philadelphia
Physicians: Clinic Director: Michael Fisher, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neurofibromatosis Clinic
Phone: (503) 413-4505
Location: 2801 N. Gantenbein Ave., Suite 2225, Portland, OR 97227
Website: Randall Children’s Hospital at Legacy Emanuel
Physicians: George Anadiotis, D.O., Clinical Geneticist; Dana Simpson, M.D., Clinical Geneticist; Kari Magnussen, M.S., Genetic Counselor ; Marta Vaughn, R.D., Dietitian
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multidisciplinary, Pediatric
Brain Institute- Nerve Center
Phone: 503-494-4314
Location: 3303 S. Bond Avenue, Portland, Oregon 97239
Website: Oregon Health & Science University
Physicians: Kim J. Burchiel, M.D., F.A.C.S.
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric, Adults
Pediatric Neurofibromatosis at Doernbecher Children's Hospital
Phone: 503-346-0640
Location: 707 S.W. Campus Drive Portland, OR 97239
Website: Oregon Health & Science University
Physicians: Kory Keller, M.S., C.G.C.
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric
Angie Fowler Adolescent & Young Adult Cancer Institute
Phone: 216-844-1443 (Scheduling) 216-286-6147 (Inquiries)
Location: 11100 Euclid Ave, Cleveland, OH 44106
Website: UH Rainbow Babies and Children's Hospital
Physicians: Clinic Director: Duncan Stearns, MD; Clinic Co-Director: Breanne Roche, DNP, APRN, CPNP-PC, CPHON
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric
UH Seidman Cancer Center
Phone: 216-541-1051 (Adult) 440-745-1097 (Pediatrics)
Location: 11100 Euclid Ave, Cleveland, OH 44106
Website: UH Cleveland Medical Center
Physicians: President and Scientific Director: Dr. Theodore N. "Ted" Teknos
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Teens
The Ohio State University NF Clinic
Phone: 614-366-4219
Location: 915 Olentangy River Road, Columbus, OH 43212
Website: The Ohio State University Wexner Medical Center
Physicians: Clinic Director: Oliver Adunka, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neuro-Oncology
Phone: (614) 722-8860
Location: 700 Children's Drive Columbus, OH 43205
Website: Nationwide Children's Hospital
Physicians: Program Directors: Maryam Fouladi, MD and Jeffrey R. Leonard, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Cleveland Clinic Neurofibromatosis Program
Phone: 216-442-5069 (Scheduling) 216-442-5064 (Inquiries)
Location: 9500 Euclid Avenue Building S, 6th floor, Cleveland, OH 44195
Website: Cleveland Clinic Foundation
Physicians: Clinic Director: Gary Hsich, MD Clinic Co-Director: Mina Lobbous, MD, MSPH
Specialty: NF1, NF2
Facility Type: Multi-Disciplinary, Pediatric and Adult
The Cincinnati Neurofibromatosis Clinic
Phone: 513-636-8826
Location: 3333 Burnet Avenue, Cincinnati, OH 45229
Website: Neurofibromatosis Program
Physicians: Clinic Director: Peter de Blank, MD, MSCE Clinic Co-Director: Brittany Simpson, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Comprehensive Neurofibromatosis Clinic
Phone: 330-543-8050
Location: NeuroDevelopmental Science Center, Suite 4400, Considine Professional Building, 215 West Bowery Street Level 4, Akron, OH 44308
Website: Akron Children’s Hospital
Physicians: Clinic Director: Erin Wright, MD Clinic Co-Director: Matthew Ginsberg, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult through 25 years.
Atrium Health Wake Forest Baptist Neurofibromatosis Multidisciplinary Clinic
Phone: 336-716-4101
Location: 1 Medical Center Boulevard, Winston Salem, NC 27157
Website: Wake Forest University Health Sciences
Physicians: Clinic Director: Roy Strowd, MD, MS, MEd Clinic Co-Director: Amelia Kirby, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Pediatric and Adult
UNC Adult Neurofibromatosis/Schwannomatosis Clinic
Phone: 984-974-7337
Location: 6011 Farrington Rd. #101, Chapel Hill, NC 27517
Website: University of North Carolina Hospitals
Physicians: Clinic Director: Eric Creed, MD Clinic Co-Director: Soma Sengupta, MD, PhD, MBA, FRCP, FAAN, FANA
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adults
Duke University Comprehensive Neurofibromatosis Clinic
Phone: 919-668-6288, option #3
Location: 2301 Erwin Rd, Durham, NC 27710
Website: Duke University School of Medicine
Physicians: Clinic Director: David Van Mater, MD, PhD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Pediatric, Adult
Phone: 917-492-4200
Location: 1050 Park Avenue, New York, NY 10028
Website: Weinberg Plastic Surgery
Physicians: Hubert Weinberg, MD
Specialty: Electrodessication
Facility Type: Contact for Info
University of Rochester Neurofibromatosis Clinic
Phone: 585-275-2808
Location: 200 East River Road, Rochester, NY 14623
Website: University of Rochester
Physicians: Clinic Director: Alexander Paciorkowski, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Adult Multidisciplinary Neurofibromatosis Clinic
Phone: 716-845-1508
Location: Neuro-Oncology Center, Elm & Carlton Streets, Buffalo, NY, 14263
Website: Roswell Park Comprehensive Cancer Center
Physicians: Clinic Director: Lindsay Lipinski, M.D., FAANS
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults
The Comprehensive NF Center @ NYU Langone Health
Phone: 212-263-9695
Location: 160 East 32nd St, Medical Level, New York, NY 10016
Website: NYU Langone Heath
Physicians: Clinic Director: Kaleb Yohay, MD; Clinic Co-Director: Devorah Segal, MD, PhD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Major Academic Medical Center, Pediatric and Adult
Otology & Neurotology
Phone: 212-263-5565
Location: 530 First Avenue, Suite 7Q, New York, NY 10016
Website: New York University Division of Otology and Neurotology
Physicians: Chair of the Department of Otolaryngology—Head and Neck Surgery: J. Thomas Roland, Jr. FACS
Specialty: NF2
Facility Type: NF2 Major Medical Center
Neurofibromatosis Clinic
Phone: 212-639-6767
Location: 1275 York Avenue, New York, NY 10065
Website: Memorial Sloan Kettering NF Program
Physicians: Clinic Directors: Matthias A. Karajannis, MD, MS (Pediatric Neuro-oncology Services), Anna Piotrowski, MD (Adult Neuro-oncology Services)
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Pediatric and Adult
Comprehensive Neurofibromatosis (NF) Clinic
Phone: 716-323-6170
Location: 1001 Main St, Buffalo, NY 14263
Website: Gosliano Children's Hospital Of Buffalo
Physicians: Clinic Director: Matthew Barth, MD (Neuro-oncology) Clinic Co-Director: Veetai Li, MD (Neurosurgery)
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neurology
Phone: (585) 275-2971
Location: 601 Elmwood Avenue, Box 631, Rochester, NY 14642
Website: Golisano Children's Hospital at University of Rochester Medical Center
Physicians: Alex Paciorkowski, MD, Division Chief
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric
Columbia University NF Clinic
Phone: 212-342-3587 or nypnfcenter@cumc.columbia.edu
Location: 180 Fort Washington Avenue, New York, NY 10032
Website: Columbia University Irving Medical Center
Physicians: Clinic Director: Gurcharanjeet ("Bonnie") Kaur, MD
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Pediatric and Adult
Neurocutaneous Center
Phone: 718-920-4378
Location: 3415 Bainbridge Avenue, Bronx, NY 10467
Website: Children’s Hospital at Montefiore Medical Center (CHAM)
Physicians: Clinic Director: Nagma Dalvi, MD Clinic Co-Director: Susan Duberstein, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric
The Melodies Center for Childhood Cancer and Blood Disorders
Phone: 518-262-5513
Location: 43 New Scotland Ave, Albany Medical Center, A Building, Floor 5, Albany, NY 12208
Website: Albany Medical Center
Physicians: Clinic Director: Lauren Weintraub, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
St. Joseph's Health Neurofibromatosis Diagnostic and Treatment Center
Phone: 973-754-4503
Location: 11 Getty Avenue, Paterson, NJ 07503
Website: St. Joseph's Regional Medical Center
Physicians: Clinic Director: Punita Gupta, MD, FACMG
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
The Neurofibromatosis Center of New Jersey
Phone: 973-972-2550
Location: 90 Bergen Street, Suite 8100, Newark, NJ 07103
Website: Rutgers New Jersey Medical School
Physicians: Clinic Director: Caroline Hayes-Rosen, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neurofibromatosis Clinic
Phone: (402) 955-3950
Location: 111 N 84th Street, Omaha, NE 68114
Website: Children's Nebraska
Physicians: Clinic Director: Minnie Abromowitch, MD Clinic Co-Director: Mary Rickard, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric
Washington University Neurofibromatosis Center
Phone: Pediatric: 314-454-6120; Adult: 314-747-1171
Location: Pediatric Patients: St. Louis Children’s Hospital, One Children's Place, Suite 2130, St. Louis, MO 63110; Adult Patients: Siteman Cancer Center, 4500 Forest Park Avenue, St Louis MO 63108
Website: Washington University in St. Louis
Physicians: Clinic Director: David H. Gutmann, MD, PhD Clinic Co-Director: Angela C. Hirbe, MD, PhD
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, NF Consortium, Pediatric and Adult
Cardinal Glennon Children's Hospital
Phone: 314-577-5397
Location: 1465 South Grand Blvd, St. Louis, Missouri 63104
Website: Saint Louis University
Physicians: Clinic Director: Ali Jamal, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric through 21 years.
Children's Mercy Neurofibromatosis Clinic
Phone: 816-234-3490
Location: 2401 Gillham Rd Kansas City, MO 64108
Website: Children’s Mercy Hospital
Physicians: Clinic Director: Jaclyn Peraino, DO Clinic Co.Director: Dihong Zhou, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric through 21 years.
M Health Fairview Journey Pediatric Specialty Clinic
Phone: 612-365-8100
Location: 2450 Riverside Ave 9th Floor, Journey Clinic, Minneapolis, MN 55454
Website: M Health - University of Minnesota Medical Center and Masonic Children's Hospital
Physicians: Clinic Director: Clay Hoerig, DO
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neurofibromatosis Clinic
Phone: 507-284-8198 or 507-284-3215
Location: 200 First St. SW, Rochester, MN 55905
Website: Mayo Clinic
Physicians: Clinic Director: Dusica Babovic-Vuksanovic, MD, FAAP, FACMG; Clinic Co-Director: Radhika Dhamija, MBBS
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Children's Minnesota Neurocutaneous Clinic
Phone: 612-813-7240
Location: Children’s Specialty Center, Suite 410, 2530 Chicago Avenue South Minneapolis, MN 55404
Website: Children’s Hospitals and Clinics of Minnesota
Physicians: Clinic Director: Amy Lebedoff, MD
Specialty: NF1, NF2
Facility Type: Pediatric
Neurology Clinic- Taubman Center
Phone: 734-936-9020
Location: 1500 E Medical Center Dr Floor 1 Reception C Ann Arbor, MI 48109-5322
Website: University of Michigan Neurosurgery
Physicians: Dr. B. Gregory Thompson, neurosurgeon
Specialty: NF1, NF2
Facility Type: Adults, Pediatric
Pediatric Genetics Clinic- C.S. Mott Children's Hospital
Phone: 734-764-0579
Location: 1540 E Hospital Dr., Floor 6, Reception C, Ann Arbor, MI 48109-4234
Website: University of Michigan Pediatric Genetics
Physicians: Division Director: Catherine Keegan, MD, PhD
Specialty: NF1
Facility Type: Children
The Medical Genetics Clinic
Phone: 734-647-8902
Location: 24 Frank Lloyd Wright Dr., Ste 1300, Lobby C, Ann Arbor, MI 48105-9484
Website: University of Michigan - Adult Genetics
Physicians: Clinic Director: Wendy R. Uhlmann, MS, LCGC
Specialty: NF1, Schwannomatosis
Facility Type: Adults
Hermelin Brain Tumor Center
Phone: 313-916-2723
Location: 2800 W Grand Blvd, 4 East, Detroit, MI 48202
Website: Henry Ford Neurofibromatosis Clinic
Physicians: Clinic Director: Tobias Walbert, MD, PhD, MPH
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adolescents, Adults
Neurofibromatosis Program
Phone: (616) 391-2424
Location: 330 Barclay Ave. NE Suite 203, Grand Rapids, MI 49503
Website: Corewell Health Grand Rapids (Adult and Pediatrics)
Physicians: Clinic Directors: Dr. Cynthia Hingtgen (Adult Neurology) and Dr. Daniel Fain (Pediatric Neurology)
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children
Pediatric Neurofibromatosis Program
Phone: (616) 391-2414
Location: McBrien Pediatric Neurology, 3555 W. 13-Mile Rd., Royal Oak, MI 48073
Website: Corewell Health East (Pediatrics)
Physicians: The NF Clinic (for children) at McBrien Pediatric Neurology in Royal Oak is clinically coordinated by Dr. Kate Gowans (Hematology-Oncology) and Dr. Heather Little (Neurology)
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric
University of Oklahoma NF Clinic
Phone: 405-271-4211
Location: 1200 N. Childrens Ave, Suite 5D, Oklahoma City, OK 73104
Website: University of Oklahoma Health Sciences Center
Physicians: Clinic Director: Danielle DeMarzo, MD; Clinic Co-Director: Rene Y. McNall-Knapp, MD
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Pediatric and Adult
Genetic Syndromes
Phone: 617-636-5000
Location: 800 Washington St., Boston, MA 02111
Website: Tufts Medical Center
Physicians: Physicians: Dallas Reed, MD, Medical Geneticist, Obstetrics (617-636-8100); John Gaitanis, MD, Chief Pediatric Neurology (617-636-8100); Carl B. Heilman, MD, Neurosurgeon in Chief (617-636-5860); Julian K. Wu, MD, Chief, Division of Neurosurgical Oncology (617-636-4500); Nancy Pinnell, Genetic Counselor (617-636-4540)
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Pediatric and Adult
The Family Center for Neurofibromatosis
Phone: 617-724-7856
Location: 55 Fruit Street, Yawkey 9E, Boston, MA 02114
Website: Massachusetts General Hospital
Physicians: Clinic Director: Scott R. Plotkin, MD, PhD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult, NF Consortium
Pediatric Multidisciplinary Neurofibromatosis Program
Phone: 617-355-6394 (NF1) and 617-355-6388 (NF2)
Location: 300 Longwood Ave, Boston, MA 02115
Website: Boston Children's Hospital
Physicians: Clinic Director: David T. Miller, MD, PhD Clinic Co.Director: Nicole Ullrich, MD, PhD
Specialty: NF1, NF2
Facility Type: Pediatric and Adult. Clinic sees patients up to age 25 years. Adults may be seen for initial diagnosis only.
Comprehensive Neurofibromatosis Center
Phone: 410-502-6732
Location: Johns Hopkins Outpatient Center, 601 N. Caroline St, 5th floor, Baltimore, MD 21287 Additional Location: Johns Hopkins Greenspring Station, Pavilion II 10753 Falls Road, Suite 115, Lutherville, MD 21093
Website: The Johns Hopkins Hospital
Physicians: Clinic Director: Jaishri Blakeley, MD
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Pediatric and Adult
Pediatric Oncology Branch
Phone: 240-760-6203
Location: Building 10, Room 1-3752 Bethesda, MD 20892
Website: National Cancer Institute
Physicians: Clinic Director: Brigitte C. Widemann, MD, Chief, Pediatric Oncology Branch
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Pediatric
Manning Family Children’s Neuro-Oncology Program
Phone: (504) 896-3099
Location: 3040 33rd St. Metairie, LA 70001
Website: Children’s Hospital of New Orleans
Physicians: Clinic Co-Directors: Maria C. Velez, MD (neuro-oncologist) and Jerome Volk, MD (neurosurgeon)
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
UofL Health – Brown Cancer Center
Phone: 502-588-2160 or email Leslie.Calderon@UofLHealth.org
Location: 529 South Jackson Street Louisville, KY 40202
Website: University of Louisville
Physicians: Clinic Director: Guneet Sarai, M.D. Neuro Nurse Naviagator: Keola Calderon
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Kentucky Neuroscience Institute Neurofibromatosis Clinic
Phone: 859-323-5661
Location: 740 S. Limestone First Floor, Wing C Lexington, KY 40536
Website: University of Kentucky
Physicians: Clinic Director: Donita D. Lightner, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neurofibromatosis Clinic
Phone: 1-319-356-2229
Location: 200 Hawkins Drive, Iowa City, IA 52242
Website: UI Stead Family Children's Hospital
Physicians: Clinic Director: Alpa Sidhu, MBBS, PhD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
The Neurofibromatosis (NF) Multidisciplinary Program
Phone: (317) 944-2143
Location: 1030 W. Michigan Street, Indianapolis, IN 46202
Website: Indiana University Health – Riley Children’s
Physicians: Clinic Director: Steven Rhodes, MD, PhD Clinic Co.Director: Laurence E. Walsh, MD
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Adults, Children
UIC NF Clinic
Phone: 312-996-3369
Location: 1801 W. Taylor, Outpatient Care Center (1E for Adults/2E for Pediatrics), Chicago, IL 60612
Website: University of Illinois, Chicago
Physicians:
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neurofibromatosis Program
Phone: 773-702-6169
Location: Main Campus: 5841 S. Maryland Ave, Chicago, IL 60637
Website: University of Chicago Medicine
Physicians: James Tonsgard, MD, Director, University of Chicago Ambulatory Program for Neurofibromatosis
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Lou and Jean Malnati Brain Tumor Institute
Phone: 312-695-4360
Location: 675 N. St Clair St, 20th Floor, Chicago, IL 60611
Website: Northwestern Memorial Hospital
Physicians: Clinic Co-Directors: Roger Stupp, MD and James P. Chandler, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Adult (age >18)
Plastic & Reconstructive Surgery
Phone: 312-335-9566
Location: 60 E Delaware Place, #1450 Chicago, IL 60611
Website: McKay McKinnon, MD
Physicians: McKay McKinnon, MD; Plastic & Reconstructive Surgery, Plexiforms
Specialty: NF1, NF2
Facility Type: Children, Adults
Neurofibromatosis Program
Phone: 312-227-6120
Location: 467 West Deming Place, Suite 900Chicago, IL 60614
Website: Ann & Robert H. Lurie Children's Hospital
Physicians: Clinic Director: Robert Listernick, MD Clinic Co.Directors: Carlos E Prada, MD - Miriam Bornhorst, MD - Janice Lasky Zeid, MD
Specialty: NF1, NF2
Facility Type: Pediatric up to 22 years old
Georgia Neurofibromatosis Clinic
Phone: (706) 721-KIDS (5437)
Location: Pediatric Neurology Clinic, 1446 Harper Street, Augusta, GA 30912
Website: Wellstar Children's Hospital of Georgia
Physicians: Clinic Director: John Henson, MD
Specialty: NF1, NF2
Facility Type: Children, Adults, Multi-Disciplinary
Neurofibromatosis Clinic
Phone: 404-785-5437
Location: 2174 North Druid Hills Road NE, Atlanta, GA 30329
Website: Children's Healthcare of Atlanta
Physicians: Clinic Director: David Wolf, MD, PhD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children
UF Neurofibromatosis and Neurocutaneous Center
Phone: (352) 273-9000
Location: 1505 SW Archer Road 1st floor, Gainesville, FL 32610
Website: University of Florida, Neuro Medicine Hospital
Physicians: Clinic Director: Hans H. Shuhaiber M.D. hshuhaiber@ufl.edu
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neurofibromatosis Clinic
Phone: 904-427-8453
Location: 841 Prudential Drive, Suite 1900, Jacksonville, FL 32207
Website: University of Florida, Jacksonville, Jacksonville Health Science Center
Physicians: Pamela L. Trapane, M.D., Chief, Division of Pediatric Genetics. pamela.trapane@jax.ufl.edu
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Pediatric and Adult
Neurofibromatosis Center
Phone: 305-663-8595
Location: 3100 SW 62 Avenue #301, Miami, FL 33155
Website: Nicklaus Children's Hospital
Physicians: Mislen S Bauer, MD, Director, Neurofibromatosis Program
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, Adults, Children
Moffitt Genetic Neuro-oncology Clinic
Phone: 1-877-751-7930
Location: 12902 USF Magnolia Drive, Tampa, FL 33612
Website: Moffitt Cancer Center
Physicians: Clinic Director: Sepideh Mokhtari, MD Clinic Co.Director's Name: Nam Tran, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults
Neurocutaneous Disorders Clinic
Phone: 727-767-4176
Location: 601 5th Street South, Suite 320, St. Petersburg, FL 33701
Website: Johns Hopkins All Children's Hospital
Physicians: Clinic Director: Stacie Stapleton, MD Clinic Co.Director: Melissa Crenshaw, MD, FAAP, FACMG
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children
AdventHealth Medical Group Pediatric Neurofibromatosis Clinic
Phone: 407-303-7945
Location: 2501 North Orange Avenue Suite # 589, Orlando, FL 32804
Website: AdventHealth for Children
Physicians: Medical Director: Chenue Abongwa, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric
The Gilbert Family Neurofibromatosis Institute
Phone: 202-476-3611 or 202-476-2120
Location: 111 Michigan Avenue, NW Washington, DC 20010
Website: District of Columbia - Children's National Health System
Physicians: Roger Packer, MD, Director; Clinic Coordinator: Jennifer Ramos-Blanco (202-476-5181)
Specialty: NF1, NF2, Schwannamatosis
Facility Type: Multi-Disciplinary, NF Consortium, Adults, Children
Neurofibromatosis Multidisciplinary Clinic
Phone: 800-416-4441
Location: 1600 Rockland Road, Wilmington, DE 19803
Website: Nemours Children's Hospital
Physicians: Clinic Director: Dr. R. Taylor Sundby
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Children
Neurocutaneous Syndrome Clinic
Phone: 877-925-3637 (1-877-YALE MDS)
Location: 20 York Street, New Haven, CT 06520
Website: Yale New Haven Hospital
Physicians: Asher Marks, MD, Director of Pediatric Neuro-Oncology; Clinic Coordinator: Jamie Batson Phone: 1-877-925-3637 (1-877-YALE MDS) Fax: 203-737-7635
Specialty: NF1, NF2, Tuberous Sclerosis
Facility Type: Pediatrics to Young Adult; Multi-Disciplinary
Neurogenetics Clinic
Phone: 860-837-7500
Location: 505 Farmington Avenue, Farmington, CT. 06032
Website: Connecticut Children's Medical Center
Physicians: Clinic Director: Francis DiMario, MD.
Specialty: NF1, NF2
Facility Type: Pediatrics up to 18
Neurofibromatosis Program
Phone: 720-777-4532 or 720-777-0020
Location: 13123 East 16th Ave, Aurora, CO 80045
Website: Children's Hospital Colorado
Physicians: Clinic Director: Aaina Kochhar Clinic Co-Director: John Binder, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult (up to 26 years)
Neurocutaneous Syndromes Clinic
Phone: 559-353-6215
Location: 9300 Valley Childrens Place, Madera, CA 93636
Website: Valley Children’s Healthcare
Physicians: Clinic Director: Merveen Appu, MD, MS Clinic Co-Director: Audrey Green-Murphy, DO
Specialty: NF1, NF2
Facility Type: Pediatric through 21 years.
UCLA Multidisciplinary NF Clinic
Phone: (310) 825-5111 or email braintumor@mednet.ucla.edu
Location: 200 UCLA Medical Plaza, Suite 120, Los Angeles, CA 90095
Website: University of California, Los Angeles - UCLA
Physicians: Clinic Director: Phioanh (Leia) Nghiemphu, MD Clinic Scientific Director: Marco Giovannini, MD, PhD
Specialty: NF1, NF2, Schwannomatoisis
Facility Type: Multi-Disciplinary, Pediatric, Adults
Pediatric and Adult Neurology Clinic
Phone: 855-722-8273- Pediatric 415-353-7500- Adult
Location: 1825 Fourth St., Fifth Floor, 5A, San Francisco, CA 94158- Pediatric 400 Parnassus Avenue, Floor 8, San Francisco, CA 94143- Adult
Website: UCSF - University of California, San Francisco
Physicians: Pediatric Clinic Director- Alyssa Reddy, MD, Adult Clinic Director: Dr. Brian Na, MD, PhD*****************************Pediatric website: https://www.ucsfbenioffchildrens.org/clinics/neurofibromatosis-type-1-nf-1-and-schwannomatosis
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Children, Adults
Adult Genetics Clinic
Phone: 714-456-7002
Location: Pavilion 1, UCI Medical Center, 101 The City Drive, Orange, CA 92868
Website: UC Irvine Medical Center
Physicians: Clinic Director: Dr. Fuki Marie Hisama
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary; Adults
Genomic Medicine Clinic
Phone: 916-703-0300
Location: 2825 50th Street Sacramento, CA 95817
Website: UC Davis Health - MIND Institute
Physicians: Clinic Director: Dr. Suma Shankar
Specialty: NF1, NF2, Schwannomas
Facility Type: Multi-Disciplinary, Adults, Children
Stanford Neuroscience Health Center
Phone: 650-463-9315
Location: 213 Quarry Road, 1st Floor Palo Alto, CA 94304
Website: Stanford Health Center
Physicians: Clinic Director: John Day, ND, PhD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Adult
Stanford Pediatric NF Center
Phone: (650) 497-8953
Location: 725 Welch Road, Suite 160, Palo Alto, CA 94304
Website: Stanford/Lucile Packard Children's Hospital
Physicians: Clinic Co-Director: Cynthia Campen, MD Clinic Co-Director: David A. Stevenson, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pedatric and Adult
Plastic Surgery
Phone: 626-385-4659
Location: 39 Congress St., Suite 402 Pasadena, CA 91105
Website: Panossian Plastic Surgery
Physicians: Andre Panossian, MD
Specialty: NF1, NF2
Facility Type: Plastic Surgery, Children, Adults
Genetics Clinic
Phone: (562) 728-5035
Location: 2801 Atlantic Ave., Long Beach, CA 90806
Website: Miller Children’s and Women’s Hospital
Physicians: Clinic Director: Natalie Gallant, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary; Children, Adult (case by case basis)
Northern California Neurofibromatosis Clinic of Kaiser Permanente Oakland Medical Center
Phone: 510-752-5101
Location: 3505 Broadway, Oakland, CA, 94611
Website: Kaiser Permanente, Northern California
Physicians: Clinic Director: Anirudh Saronwala, MD Clinic Co-Director: Kenneth Fox, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Neurofibromatosis Clinic
Phone: 213-483-9930
Location: 1245 Wilshire Blvd., North & South Towers, Los Angeles, CA 90017
Website: PIH Health House Clinic
Physicians: William H. Slattery, III, MD and Gregory p. Lekovic, MD, PhD
Specialty: NF2, Schwannomatosis
Facility Type: Children, Adults, Outpatient clinic and surgery
Phone: 877-254-9362
Location: 1500 E. Duarte Road Duarte, CA 91010-3000
Website: City of Hope
Physicians: Dr. Keng Lam, M.D. and Dr. Mike Chen, M.D.
Specialty: NF1, Malignant Peripheral Nerve Sheath Tumors, and associated brain/spinal tumors
Facility Type: Adults, Children
CHOC Neurofibromatosis Program
Phone: 714-288-3500 or 888-457-1362
Location: 1201 W. La Veta, Orange, CA 92868
Website: Children's Hospital Orange County (CHOC)
Physicians: Clinic Director: Neda Zadeh,MD, Pediatric Genetics
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric
Comprehensive Neurofibromatosis Clinic
Phone: 323-361-2471
Location: 4650 Sunset Blvd., MS #82, Los Angeles, CA 90027
Website: Children's Hospital Los Angeles
Physicians: Clinic Director: Tena Rosser, MD Clinic Co-Director: Linda Randolph, MD, FAAP, FACMG
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Pediatric Neurofibromatosis
Phone: 1‑833-383-PEDS
Location: 8700 Beverly Blvd, Los Angeles, CA 90048
Website: Cedars-Sinai Medical Center
Physicians: Pedro A. Sanchez, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Multi-Disciplinary, Adults, Children
Neurofibromatosis Clinic
Phone: 501-830-1474 or 501-475-1183
Location: 1 Children's Way, Little Rock, AR 72202
Website: Arkansas Children's Hospital
Physicians: Gregory Sharp, MD, Elizabeth Sellars, MD, (Medical Director) Kevin Bielamowicz, MD, Adrianne Parkey, MD; Aurielle Westfall (NF Clinic Nurse Coordinator)
Specialty: NF1
Facility Type: Pediatric
Neurofibromatosis Clinic
Phone: Scheduling: 602-933-0063 Inquiries: 602-933-5468
Location: 1919 E Thomas Rd, Phoenix, AZ 85016
Website: Phoenix Children's Hospital
Physicians: Clinic Director: Neil R. Friedman, MBChB/ Neurology; Clinic Co-Director: Ross Mangum, MD
* * * * * * * * * * Phoenix Children’s Neurofibromatosis Clinic -
Living with NF can be challenging, but at Phoenix Children’s Neurofibromatosis Clinic we provide comprehensive patient-centered care and compassionate support. We understand that each patient's journey with NF is unique, which is why we take a holistic approach to care, bringing together a team of specialists to address every aspect of the condition. We partner with our patients to empower them to take an active role in managing their health and well-being and prioritize open communication. We partner with our patients to empower them to take an active role in managing their health and well-being and prioritize open communication. Our multidisciplinary team of world-class specialists includes neurologists, oncologists, ophthalmologists, genetic counselors, dermatologists, and other experts who work collaboratively to provide personalized treatment plans. We are dedicated to advancing the field of NF research, offering cutting-edge treatments, and supporting patients every step of the way. Together, we can build a brighter future for NF patients and their families.
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric
Clinical Genomics
Phone: 480-342-6263
Location: 5777 E. Mayo Blvd. Phoenix, AZ 85054
Website: Mayo Clinic Hospital - Phoenix
Physicians: Clinical Director: Mayoa (Mayo) A. Osundiji, MBBS, PhD Clinical Co-Director: Maciej M Mrugal, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pedatric and Adults
Neurology
Phone: 602-687-8555
Location: 3330 N 2nd St., Ste 402, Phoenix, AZ 85012
Website: Arizona Pediatric Neurology & Neurogenetics Associates
Physicians: Vinodh Narayanan, MD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Adults, Children
For information, please contact:
NF Network
PO Box 1530
Wheaton, IL 60187
630.510.1115
www.nfnetwork.org
admin@nfnetwork.org
Neurodevelopmental Outreach Clinic
Phone: 907- 264-6281
Location: 3601 C Street, Suite 322, Anchorage, AK 99503
Website: Alaska Department of Health and Social Services - Division of Public Health
Physicians: Ms. Wahlira
Specialty: Genetic Disorders
Facility Type: Children
UAB Neurofibromatosis Clinic
Phone: 205-934-4983 or 866-822-4362
Location: 720 20th Street South, Kaul 230, Birmingham, AL 35233
Website: University of Alabama at Birmingham
Physicians: Clinic Director: Rebecca Brown, MD, PhD
Specialty: NF1, NF2, Schwannomatosis
Facility Type: Pediatric and Adult
Click on state of Washington - University of Washington Medical Center - Montlake regarding televisits available for Hawaii.
For information, please contact:
NF Network
PO Box 1530
Wheaton, IL 60187
630.510.1115
www.nfnetwork.org
admin@nfnetwork.org
Click on state of Washington - University of Washington Medical Center - Montlake, regarding televisits available for Wyoming.
For information, please contact:
NF North Central
Connect with us by clicking here.
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For information, please contact:
NF North Central
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Click on state of Washington - University of Washington Medical Center - Montlake, regarding televisits available for Idaho.
For information, please contact:
NF Network
PO Box 1530
Wheaton, IL 60187
630-510-1115
www.nfnetwork.org
admin@nfnetwork.org
For information, please contact:
NF Network
PO Box 1530
Wheaton, IL 60187
630.510.1115
For information, please contact:
NF Network
PO Box 1530
Wheaton, IL 60187
630.510.1115
www.nfnetwork.org
admin@nfnetwork.org
For information, please contact:
NF Network
PO Box 1530
Wheaton, IL 60187
630.510.1115
www.nfnetwork.org
admin@nfnetwork.org
For information, please contact:
NF Network
PO Box 1530
Wheaton, IL 60187
630.510.1115
For information, please contact:
NF Northeast
9 Bedford Street
Burlington, MA 01803
781.272.9936
For information, please contact:
NF Northeast
9 Bedford Street
Burlington, MA 01803
781.272.9936
For information, please contact:
NF Northeast
9 Bedford Street
Burlington, MA 01803
781.272.9936
For information, please contact:
NF Central Plains
9218 Metcalf, Suite 335
Overland Park, KS 66212
For information, please contact:
NF North Central
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