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Neurofibromatosis Network

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Building NF Community


A New Generation of NF Warriors Launch SketchNF


Shilp Shah                 Sahil Shah


Get ready for SketchNF's second annual pediatric art auction, scheduled for the end of May this year! Whether you've participated before or you're joining us for the first time, we invite all kids with any form of NF to take part in our auction. The format remains unchanged from last year, and we will be sending art packages free of charge to all participating families nationwide! You will be able create up to three drawings, and your artwork will be up for auction in May. The piece that raises the highest amount will be awarded a grand prize from NFNetwork and SketchNF.

If you have interest in participating in this years auction or have any additional questions, please email: or For more information about SketchNF visit:

Instagram: @sketchnf_

Stay tuned for more details coming soon! In the meantime, feel free to look at last year's art here.


One Sketch at a Time

SketchNF is dedicated to raising funds and creating a network for pediatric NF patients one sketch at a time.

Our mission is to EMPOWER children within the pediatric NF community by allowing them to share their voice and stories through art. By auctioning off these art pieces, each child will directly be contributing to the FUNDRAISING towards NF research and support groups. We hope that as each child shares their unique story, it will raise AWARENESS for what NF is and how it affects children and their families. As the number of children who participate grows, so will our COMMUNITY, and we hope to create an online platform from SketchNF that is aimed towards connecting children with the disorder so that no one will ever feel alone in this fight.

As each child’s unique story is shared through art, we hope that people can better understand the impact NF has on each of their precious lives.

So how will this work?

We will send out individual packages FREE OF COST that contain directions and a starter kit of supplies for each kid to create their artwork and talk about their story (they can use their own supplies as well!). Using the return envelope we provide, sketches will be sent back to us where we will frame them and auction them off during NF Awareness Month. At the end of the auction, the artwork will go to the highest bidder who will also be connected with the child who created it. Additionally, the creator of the drawing that raises the most money will be given a prize courtesy of NF Network!


I was 14 when Sahil told me he had tumors in his neck. Diagnosed with neurofibromatosis type 1 at the age of 1, he had been symptom-free until the age of 9. Over the next 7 years, I watched helplessly as he endured nights of splitting migraines, wracking neck pain, and even surgery to remove the tumors in his skull. I did my best to support him but I could never truly understand what he was going through; he needed people that could empathize with his situation. But as we looked online, it was difficult to find an accessible pediatric NF community, something that would make him feel not alone in this fight. I wanted to make a change for other kids like Sahil. This was the birth of SketchNF. 



Currently Supported by NF Network, Boston Children's Hospital, UCLA, Children's Hospital of Los Angeles, and the University of Utah.