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Neurofibromatosis Network

Leading NF Advocacy
Building NF Community

Ways to Help NF


Combined Federal Campaign  

Do you, your friends or family work for the federal government, the military or are a postal worker?  Please consider becoming part of the Combined Federal Campaign with workplace giving.  The mission of the CFC is to support different charities through a program that is employee focused. All federal employees have the opportunity to participate. Pledges made by Federal civilian, postal and military donors during the campaign season (September 1st to December 15th) support eligible non-profit organizations like the NF Network.

For more information on the CFC, or to request a CFC Charity List and/or a CFC pledge form, visit the CFC website. Check with your company’s Human Resources Department if you have questions.

Our CFC Code is #10227

Employer Matching Gifts 

If your employer has a matching gift program your donation could be doubled, tripled, quadrupled, and, potentially, matched up to (5) times your original gift amount. Did you know that many employers match donations given by the employee, their spouse, children up to age 25, their retired workers and even the retired workers spouse? How about the fact that some employers will donate dollars for the hours that you volunteer at qualifying non-profits? And, that many employers will match your donations and volunteer work going back a full year? If you'd like to find out if your employer participates in a matching gift program CLICK HERE and we'll help you get started.

United Way  

If your employer conducts a United Way campaign you can designate your contributions to NF Network by writing the following on your pledge card:  Neurofibromatosis Network, PO Box 1530, Wheaton, IL 60187, 630-510-1115.

Join the NF Advocacy efforts 

The NF Network works with advocates from across the country to educate congress about the importance of federal funding for NF research.  NF Network has played a vital role in securing over $380 million federal dollars for NF research since 1996. The success of this very targeted, NF-specific research program has resulted in scientists being able gather information that has led to the development of many different drugs being tested for clinical trials.  Additional cutting-edge data that has been obtained from this program has also been used when applying for research grants at the National Institutes of Health (NIH), increasing our federal funding of NF research dollars. Sign up to join our advocacy efforts.

Make a Bequest 

You can create an enduring legacy that will impact the NF Networks mission, its families and individuals for years to come by remembering the NF Network in your Will.

The size of the gift that you set aside for the NF Network can be as large or small as you want, and you can even designate a specific program for the funds to be used for. There is no limit, and your estate will receive a tax deduction for the amount of your Bequest. Simply print the brochure and fill in the bequest information and give it to your lawyer when creating or modifying your will.

Host an NFStrong Event

NF Strong events take place in communities nationwide. These inspiring events create strong bonds that build a supportive NF community. The goal of these strong communities is to rally together and become one great voice in finding affective treatments and an eventual cure for NF. The events are a great way to involve family and friends, meet others who are affected by NF, while raising awareness of this disorder and to create funding for NF research. Contact Ashley Sola at or call (630) 510-1115.


Throughout the year the NF Network appeals to celebrities to sketch a “doodle”.  As part of NF awareness month these Doodle4NF celebrity doodles are available for auction on ebay during the month of May. Auction proceeds further our efforts to support NF patients and their families. You can view current and past years doodles on the Doodle4NF website at


Run4NF is a national fundraising campaign whose mission is to create a team of people, who through personal challenge, boost NF public awareness as they fundraise for NF. Run4NF welcomes all willing to make a difference regardless of their athletic abilities. Fundraising incentives are offered and registration fees and/or travel costs can be reimbursed. Email Ashley Sola at to express your interest.

You shop, NF Network wins! Shop online at over 700 brand name stores and a portion of each purchase will be donated to your favorite cause. Your stores, your cause, NF Network money. NF Network is listed as cause number 7859. Check it out at


Surf the web and raise money for NF! Don’t forget to use as your search engine. Every search can earn funds for the NF cause. Just go to and enter Neurofibromatosis Network as the charity you want to support. And…be sure to spread the word!

NF Chats

Do you have an interest in meeting with others in your local area with NF? Would you be interestd in helping us organize a local NF Chat? Call the NF Network office for assistance at 630-510-1115 or email


From the convenience of your own home you can, create a personal fundraising campaign on the NF Network Facebook page here for your birthday or in honor of a friend or loved one, create a personalized fundraising campaign (similar to a Go Fund Me page) to raise funds for NF research and support for those affected by NF. For more details contact Ashley Sola at or call 630-510-1115.

Start a Fundraising Event in Your Community

Any hobby or interest that you share with a group of people could be an NF fundraising event. If you like reading you could have a Read-A-Book4NF event at the library or Hike4NF or Fly-A-Kite4NF could be held at a local park or Stamp Collect4NF might be held a local stamp store, Gynmnastics4NF at your gymnastics school, Knit4NF could be done anywhere. Recently, a gentleman had an online gaming event and another a paranormal conference with funds benefitting NF. I'd love to help you turn your hobby into an NF fundraiser. Contact Ashley Sola at or call (630)510-1115 with your ideas.