What are we seeking in Fiscal Year 2025?
Defense Appropriations Request: Support $25 million in funding for the CDMRP’s NF Research Program (NFRP) in the FY 2025 and FY 2026 Department of Defense Appropriations bills.
Labor HHS Appropriations Request: Support the inclusion of report language on NF research at the National Institues of Health in FY 2026 Labor Health and Human Services Education Appropria tions bill.
How is Neurofibromatosis research funded?
Through several institutes at the National Institutes of Health (NIH) and through the Department of Defense.
When did the Department of Defense start funding Neurofibromatosis Research?
The Congressionally Directed Medical Research Program (CDMRP) was established within the U.S. Army Medical Research and Material Command in 1993. The Peer-Reviewed Neurofibromatosis (NF) Research Program (NFRP) was established in 1996.
Who stands to benefit from NF research?
Approximately 175 million Americans stand to benefit from NF research:
• Cancer (65 million)
• Heart Disease (including hypertension) (50 million)
• Learning Disabilities (35 million)
• Memory Loss (at least 25 million)
• Brain Tumors (at least 30 thousand)
Are research efforts duplicated by NIH and DOD?
No, the Department of Defense offers awards to fill gaps in ongoing research and compliment initiatives sponsored by other agencies, such as NIH. The Department of Defense’s Neurofibromatosis Research Program (NFRP) and the National Institutes of Health research programs work in harmony with each other and have proven to be an excellent partnership to advance NF research. NFRP funding often allows researchers to explore new ideas and gather quality data making successful research more competitive in the larger science arena at NIH.
How are NFRP funds awarded?
Funds are awarded through a competitive two-tier review process and are not targeted for a specific site. As such, the Neurofibromatosis Research Program (NFRP) is a national program with grants awarded to researchers all over the world.
How much money has the Department of Defense received for NF research?
What NIH institutes conduct NF research?
National Cancer Institute (NCI), National Institutes of Neurological Disorders and Stroke (NINDS), National Institute of Child Health and Human Development (NICHD), National Eye Institute (NEI), National Institute on Deafness and other Communication Disorders (NIDCD), National Human Genome Research Institute (NHGRI), National Center for Research Resources (NCRR), National Heart, Lung, and Blood Institute (NHLBI), National Institute of Mental Health (NIMH), National Institute on Aging (NIA), National Institute of General Medical Sciences (NIGM), National Center for Advancing Translational Sciences (NCATS), and the Office of the Director (OD).
