October is Breast Cancer Awareness Month, an essential period for individuals to focus on their health, especially those diagnosed with Neurofibromatosis Type 1 (NF1). This month serves as a crucial reminder to prioritize early screenings, which can lead to more effective treatment and improved outcomes.

To honor this important campaign, we are excited to offer a breast cancer awareness magnet for a $25 donation. This magnet is not just a decorative item; it represents a gentle reminder and source of inspiration to schedule your mammogram. Your health is paramount, and we are here to support you in this crucial journey.

Your contributions play a vital role in empowering the neurofibromatosis community. They help fund educational initiatives, community events, and advocacy efforts designed to raise awareness and secure necessary research funding. If you wish to receive your awareness magnet, you can donate here.

Research indicates that women with NF1 face a significantly increased risk of developing breast cancer. This risk often manifests at a younger age and is associated with more aggressive tumor types. Notably, the NF1 gene is now being tested as part of genetic panels utilized for breast cancer screenings, although this risk is distinct from those associated with the BRCA1 and BRCA2 mutations. The exploration of increased breast cancer risk among women with NF1 is ongoing. In line with this, the National Comprehensive Cancer Network (NCCN) advises that women with NF1 initiate screenings as early as age 30. Access the full NCCN guidelines on risk management here.

Bev Oberlander, a breast cancer survivor living with NF1, highlights the importance of taking an active role in one's health care: "You and your doctors are a team. Never hesitate to discuss your options." Her journey underscores the critical nature of awareness and proactive measures in health management. You can read her full story here.

The information presented here draws from the expertise of Bruce Korf, a geneticist and director of the UAB NF Program. For a deeper understanding, you can explore his full article here.

As we navigate through this month dedicated to awareness and prevention, let's continue to remember the significance of regular health check-ups and the need for advocacy within the NF1 community. Together, we can make a difference in the fight against breast cancer.

Help spread awareness this month!

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