From the Network

$25M Secured for Continued Federal Funding of NF Research

$25M Secured for Continued Federal Funding of NF Research

In The News

Neurofibromatosis type 1 (NF1) diagnosis fuels nurse educator’s passion for goal concordant care

Tori McClosky’s senior year of high school turned upside down when a tumor was found on her brain. The cause was NF1. In the 20 years since then, McClosky has become a nurse and patient at MD Anderson and her experience has fueled her passion for patient care.

Research

Breakthrough in Neurofibromatosis Type 1 Treatment: SpringWorks Therapeutics' Mirdametinib Shows Promise

Explore the groundbreaking Phase 2b ReNeu trial by SpringWorks Therapeutics, showcasing the potential of mirdametinib in transforming the treatment landscape for Neurofibromatosis Type 1.

Event Highlight

Draw for a Cause: 2nd Annual SketchNF Auction

SketchNF is dedicated to raising funds and creating a network for pediatric NF patients one sketch at a time. Their mission is to empower children with NF by allowing them to share their stories and hopes through the form of art. Join us for the 2nd annual auction this May!

People Spotlight

Meet & Mingle - Join the NF Network Across the Country!

Our event chairs are hard at work preparing for an engaging events season. This summer and fall, we are excited to bring our new and long-running events to areas across the country. Our #NFStrong events and NF Hope Concerts are entering a new phase to bring excitement and community to our NF friends and families, and we look forward to having you join us!


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