Portraits and pasta
Members of the NF Central Plains community joined a crowd at the Kansas City Artists’ Coalition gallery for a special exhibit entitled “Portrait of a Disorder: Neurofibromatosis.”
Rare disease day
The 10th annual International Rare Disease Day at the University of Minnesota brought together researchers and patient advocate groups.
North Carolina company rallies around local man
Employees at Advanced Appliance Service, Inc in Winston-Salem, North Carolina, participated in one month of fundraising and awareness activities in support of Chris Denzern.
Boardman walk raises NF awareness
The Neurofibromatosis Network hosted their 4th annual Great Steps 4NF Walk, where participants split up into teams and walked three miles to spread awareness for NF.
KC community raises funds for medical research
Lindsey’s Lucky Stars raised $745 at the 2016 walk in Kansas City, Missouri.