Event Highlights

Las Vegas’ 9th Annual NF Hope® Concert

An exceptional experience every time! NF Hope Concert hits a new stage and embraces an intimate vibe for the 9th celebration of raising awareness for neurofibromatosis.

Camp New Friends - A Fun, Supportive Environment for Kids with NF

Meet the camp counselors and get ready for Camp New Friends, a summer camp for kids with neurofibromatosis taking place next week.

Stone Lotus Rocks Again at 2nd Annual Docs Rock for NF

On a warm summer night in May, Stone Lotus joined the NF Network to rock out for a great cause at the 2nd Annual Docs Rock for NF concert.

The Final Doodle4NF Auction

After 12 years, this year's Doodle4NF will be the FINAL celebrity doodle auction to raise funds for the NF Network. From presidents to actors, and artists to singers, we thank you for your support and encourage you to bid on the final doodles!

Attend NF Hope Concert Benefit at Metropolis

The NF Hope Concert hits the Windy City once again!

Neurofibromatosis Annual Appeal

Thank you for your support on our year-end appeal! We couldn't do it without you.

10/21/2018 - Las Vegas' NF Hope Concert lit up the Las Vegas strip

LAS VEGAS (KSNV) — A special concert geared to help patients with neurofibromatosis is happening here in the Las Vegas valley.

Special concert to benefit patients suffering from neurofibromatosis

LAS VEGAS (KSNV) — A special concert geared to help patients with neurofibromatosis is happening here in the Las Vegas valley.

NF California Co-Host Ask the Doctor Event

NF1 patients had the opportunity to learn about the City of Hope NF Specialists scope of practice and ask the doctors questions.

NF Walk Celebrates 10 Years

Following it's 10th year, the #NFStrong walk in Kansas City, MO reflects on the past and looks ahead to the future.

Stone Lotus plays at Inaugural Docs Rock for NF concert

On a warm Saturday evening in early June at the Orlando Shakespeare Theater, more than 125 people gathered for the inaugural Docs Rock for NF concert

11th annual Cure NF fundraiser at Buffalo Marathon

The Run4Leah/CureNF Team will participate in its 11th annual Cure NF fundraiser.

NF Central Plains: iNForms

The event drew people from Oklahoma, Missouri and Kansas who wanted to learn.

Concert raises NF awareness, funds

Rock Out to Knock Out NF 2.0, NF North Central’s second annual concert fundraiser, brought in more than $55,000 this past November.

Orlando families host year-end walk

The Neurofibromatosis Network had this year's final #NFStrong Walk for Neurofibromatosis in sunny Orlando, FL.

Symposium helps patients connect with experts

During the 5th International RASopathies Symposium, NF patients and families were able to learn more about their disorder, find out about the latest treatments, ask questions, provide input, and most importantly, collaborate.

Saddle Club raises money for NF research

The Galesburg Boots and Saddle Club raised more than $2,000 for the Neurofibromatosis Network during its Hoof N It for NF event.

NF Hope Concert expands to NYC

When Jeff and Melody Leibow founded the NF Hope Concert in 2011, they dreamed it would be held numerous cities across the country. On May 8 in front of a full house at SubCulture, the first step towards that reality came to fruition with New York City’s inaugural NF Hope Concert.

Symposium leaves attendees hopeful

More than 80 people attended the University of Wisconsin's inaugural NF1 Symposium May 3. 

Portraits and pasta

Members of the NF Central Plains community joined a crowd at the Kansas City Artists’ Coalition gallery for a special exhibit entitled “Portrait of a Disorder: Neurofibromatosis.”

Rare disease day

The 10th annual International Rare Disease Day at the University of Minnesota brought together researchers and patient advocate groups.

North Carolina company rallies around local man

Employees at Advanced Appliance Service, Inc in Winston-Salem, North Carolina, participated in one month of fundraising and awareness activities in support of Chris Denzern.

Boardman walk raises NF awareness

The Neurofibromatosis Network hosted their 4th annual Great Steps 4NF Walk, where participants split up into teams and walked three miles to spread awareness for NF.

KC community raises funds for medical research

Lindsey’s Lucky Stars raised $745 at the 2016 walk in Kansas City, Missouri.

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