Event Highlights

Yale New Haven Hospital Opens New NF Clinic

With the hard work from Dr. Asher Marks and Dr. Frank Buono, the duo have helped found a new NF clinic at Yale New Haven Hospital. The clinic, led by Dr. Marks, will offer a multi-disciplinary team to provide exceptional, coordinated, world class care to neurocutaneous syndrome patients regionally, and contribute to the community nationally.

Fun Before Back to School: Teen Game Night with the NF Network

As summer started to cool off and preparations for back to school took place, teens and young adults of the NF community came together for one night to act out charades and make new friends with other kids across the country.

Stay iNFormed with the NF Network Summer Webinar Series

Summer is a time for fun, relaxation, and time with friends and family. The NF Network is pleased to present a series of educational webinars and virtual activities this summer to connect our NF community and provide new opportunities for growth and entertainment.

Camp New Friends Goes Virtual

Camp New Friends offers children and teens with neurofibromatosis (ages 7-17) seven days and six nights of summer fun and social connections. While this session is moving online, Camp New Friends will be nothing like the virtual classrooms you are used to attending!

Win a Zoom Session with Gillian Anderson

Following her conversation with NF Hope Concert Co-Founder, Jeff Leibow, during the NF Hope Concert Live Stream, you have the opportunity to enter the raffle win a Zoom session with Gillian Anderson!

Taking the NF Hope Concert Online

This country and the world have been impacted in ways we never imagined, especially for those living with rare diseases like NF. Join us for the inaugural NF Hope Concert Live Stream on Monday, May 4 for a night of entertainment in support of the NF Network and the thousands of NF families that need our help.

Neurofibromatosis Network and NF Hope Concert Launch #MyHope4NF Campaign

In these times of fear and uncertainty, it can be hard to stay positive. The NF Network and NF Hope Concert are aiming to share some light and hope with the NF community and continue to raise NF awareness with their #MyHope4NF campaign.

A Message from NF Hope Concert Co-Founder, Jeff Leibow

In light of the spread of COVID-19, the NF Network and the NF Hope Concerts bring the difficult and proactive choice to cancel the upcoming concerts in both Chicago and New York City.

Former "Jersey Boy" Unites Area Talent for NF Hope Benefit on March 29th

Naperville's Wentz Concert Hall will be the site of the third annual benefit concert in the Chicagoland area dedicated to families and individuals affected by Neurofibromatosis (NF).

Coffee for a Cause: The ScullyCoffee4NF Fan Fundraiser

Since 2017, fans of the actress and the TV series The X-Files have organized and implemented a social media-based fundraiser for the NF Network inspired by Gillian Anderson's iconic role as Dana Scully and Anderson's generous spirit.

Advocating for the NF Network at the World’s Largest Workplace Charity Campaign

For over 30 years, the NF Network has been an approved charity through the Combined Federal Campaign, the world's largest and most successful workplace charity campaign.

Neurofibromatosis: The People, an Exhibit by Rachel Mindrup

As an accomplished painter and a mother of a son with NF1, Rachel Mindrup and her subjects are bringing neurofibromatosis into the light, one painting at a time.

Get Ready for Giving Tuesday!

Giving Tuesday is December 3rd. Take a moment to learn about what the NF Network has done since last year's annual appeal and how you can help them be ready for 2020.

Las Vegas’ 9th Annual NF Hope® Concert

An exceptional experience every time! NF Hope Concert hits a new stage and embraces an intimate vibe for the 9th celebration of raising awareness for neurofibromatosis.

Camp New Friends - A Fun, Supportive Environment for Kids with NF

Meet the camp counselors and get ready for Camp New Friends, a summer camp for kids with neurofibromatosis taking place next week.

Stone Lotus Rocks Again at 2nd Annual Docs Rock for NF

On a warm summer night in May, Stone Lotus joined the NF Network to rock out for a great cause at the 2nd Annual Docs Rock for NF concert.

The Final Doodle4NF Auction

After 12 years, this year's Doodle4NF will be the FINAL celebrity doodle auction to raise funds for the NF Network. From presidents to actors, and artists to singers, we thank you for your support and encourage you to bid on the final doodles!

Attend NF Hope Concert Benefit at Metropolis

The NF Hope Concert hits the Windy City once again!

Neurofibromatosis Annual Appeal

Thank you for your support on our year-end appeal! We couldn't do it without you.

10/21/2018 - Las Vegas' NF Hope Concert lit up the Las Vegas strip

LAS VEGAS (KSNV) — A special concert geared to help patients with neurofibromatosis is happening here in the Las Vegas valley.

Special concert to benefit patients suffering from neurofibromatosis

LAS VEGAS (KSNV) — A special concert geared to help patients with neurofibromatosis is happening here in the Las Vegas valley.

NF California Co-Host Ask the Doctor Event

NF1 patients had the opportunity to learn about the City of Hope NF Specialists scope of practice and ask the doctors questions.

NF Walk Celebrates 10 Years

Following it's 10th year, the #NFStrong walk in Kansas City, MO reflects on the past and looks ahead to the future.

Stone Lotus plays at Inaugural Docs Rock for NF concert

On a warm Saturday evening in early June at the Orlando Shakespeare Theater, more than 125 people gathered for the inaugural Docs Rock for NF concert

11th annual Cure NF fundraiser at Buffalo Marathon

The Run4Leah/CureNF Team will participate in its 11th annual Cure NF fundraiser.

NF Central Plains: iNForms

The event drew people from Oklahoma, Missouri and Kansas who wanted to learn.

Concert raises NF awareness, funds

Rock Out to Knock Out NF 2.0, NF North Central’s second annual concert fundraiser, brought in more than $55,000 this past November.

Orlando families host year-end walk

The Neurofibromatosis Network had this year's final #NFStrong Walk for Neurofibromatosis in sunny Orlando, FL.

Symposium helps patients connect with experts

During the 5th International RASopathies Symposium, NF patients and families were able to learn more about their disorder, find out about the latest treatments, ask questions, provide input, and most importantly, collaborate.

Saddle Club raises money for NF research

The Galesburg Boots and Saddle Club raised more than $2,000 for the Neurofibromatosis Network during its Hoof N It for NF event.

NF Hope Concert expands to NYC

When Jeff and Melody Leibow founded the NF Hope Concert in 2011, they dreamed it would be held numerous cities across the country. On May 8 in front of a full house at SubCulture, the first step towards that reality came to fruition with New York City’s inaugural NF Hope Concert.

Symposium leaves attendees hopeful

More than 80 people attended the University of Wisconsin's inaugural NF1 Symposium May 3. 

Portraits and pasta

Members of the NF Central Plains community joined a crowd at the Kansas City Artists’ Coalition gallery for a special exhibit entitled “Portrait of a Disorder: Neurofibromatosis.”

Rare disease day

The 10th annual International Rare Disease Day at the University of Minnesota brought together researchers and patient advocate groups.

North Carolina company rallies around local man

Employees at Advanced Appliance Service, Inc in Winston-Salem, North Carolina, participated in one month of fundraising and awareness activities in support of Chris Denzern.

Boardman walk raises NF awareness

The Neurofibromatosis Network hosted their 4th annual Great Steps 4NF Walk, where participants split up into teams and walked three miles to spread awareness for NF.

KC community raises funds for medical research

Lindsey’s Lucky Stars raised $745 at the 2016 walk in Kansas City, Missouri.


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