ClinicalTrials.gov - Neurofibromatosis
Antidote - Clinical Trials Search Tool
Medicine Assistance Tool (MAT.org) - resources to help with prescriptions and more
Genetics Home Reference - Neurofibromatosis type 1
Harvard Medical School Center - Understanding NF1
Johns Hopkins Hospital NF Center
Massachusetts General Hospital NF Clinic
National Institutes of Health - Offices of Rare Disease Research
National Institute of Neurological Disorders & Stroke
National Library of Medicine - PubMed
National Organization for Rare Disorders (NORD)
The University of Chicago Neurofibromatosis Program
Washinton University Neurofibromatsis Center
CDMRP Department of Defense Neurofibromatosis Research Program
NCI Center for Cancer Research
Family & Financial Assistance
NORD Patient Assistance Programs
Government & Disability Resources
Map Rx (Medicare Access for Patients Rx)
Potential income tax benefits for families with special needs children
Social Security Administration
Social Security Disability Help
Social Security Disability Resource Center
Resources For Deaf And Hard Of Hearing College Students
National Alliance on Mental Illness
Shriners Hospital for Children
Applying for SSD with Neurofibromatosis
Ultimate Guide to Social Security Benefits
Legal and Americans With Disabilities Act
Department of Justice ADA Home
National Organizations
American Speech-Language-Hearing Association
Described and Captioned Media Program
CapTel - The Captioned Telephone
Center for Hearing and Communication
Hearing Loss Association of America
National Association of the Deaf
National Business and Disability Council
National Center for Accessible Media
National Council on Disability
National Dissemination Center for Children with Disabilities
National Deaf Education Center
Registry of Interpreters for the Deaf
Technology Information Telecommunications
Neurofibromatosis Type 2
Association of Late Onset Deafened Adults (ALDA)
National Institute on Deafness & Other Communication Disorders
Plexiform Neurofibromas
Neurofibromatosis Therapeutic Acceleration Program
Other Resources
American Brain Tumor Association
American Chronic Pain Association
Epilepsy Foundation of America
Learning Disabilities Association
Pediatric Reno-Vascular Hypertension (pRVH)
Assistance Dogs
International Association of Assistance Dog Partners
Connect With Others
Inspire - The Neurofibromatosis Network Support Community
Health Care/Insurance
NORD's Patient Assistance Programs
Medical Care
NYU Langone Heath Comprehensive NF Center
“Plan Finder” Reviews Medicare 2012 Plan Options
United Healthcare Children's Foundation
Health Resources and Services Administration
NF Information in Spanish
Amigos con Neurofibromatosis Mexico
Transportation
