From the Network

REiNS Cutaneous Neurofibroma Working Group

REiNS Cutaneous Neurofibroma Working Group

In The News

Mom Blazes Path to Cure for Son’s Rare Disease

Nicole Henwood was told her son, A.J., had an incurable disease. She has set out to change that.


Neurofibromatosis Research Program

Check out 4 new Neurofibromatosis Research Program Announcements.

Event Highlight

Neurofibromatosis Annual Appeal

Thank you for your support on our year-end appeal! We couldn't do it without you.

People Spotlight

Living with the anxiety of having a child with NF

A letter written by Jessica Jemente about having a child with NF and the anxieties that come along with it.

Want to view archived newsletters? Click Here!


Sign up to receive the latest neurofibromatosis news and information in your inbox!



Have a story you'd like to share with the NF community? Click Here!