From the Network

House Appropriations Bill Includes $20M for NF Research

House Appropriations Bill Includes $20M for NF Research

In The News

Inspire Hosts “Summertime Life Hacks: Kids with Special Needs”

Inspire believes that “Together, We’re Better.” Providing online support communities for families and individuals around the world, Inspire seeks to bring a sense of hope and peace of mind through their summer discussion series.


Please take this new NF survey for adults!

You are being invited to participate in an anonymous online survey to help researchers design psychosocial trials for adults with neurofibromatosis. We also have some important questions on how the current coronavirus pandemic is affecting you.

Event Highlight

Stay iNFormed with the NF Network Summer Webinar Series

Summer is a time for fun, relaxation, and time with friends and family. The NF Network is pleased to present a series of educational webinars and virtual activities this summer to connect our NF community and provide new opportunities for growth and entertainment.

People Spotlight

Nate O'Dell: Living with Neurofibromatosis

Nate the Great” is an outgoing, sensitive 27-year-old young man. As an Eagle Scout and college graduate, Nate has overcome personal challenges that come with the diagnosis of NF1. Each day he works hard and lives life to the fullest, determined to overcome any obstacle in his way.

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