I lost my voice, but help others find theirs
Being blind wasn't going to stop Alex Hubbard from becoming a journalist, but his NF2 diagnosis almost did.
Washington U professor receives $3.5M grant
David H. Gutmann, director of the Neurofibromatosis Center at the Washing University School of Medicine in St. Louis, was awarded a $3.5 million grant to study NF1.
NF Hope Concert expands to NYC
When Jeff and Melody Leibow founded the NF Hope Concert in 2011, they dreamed it would be held numerous cities across the country. On May 8 in front of a full house at SubCulture, the first step towards that reality came to fruition with New York City’s inaugural NF Hope Concert.
NF mother on a mission
Melanie Leach raises NF awareness by organizing walks and bake sales in addition to traveling to D.C. each year to meet congressional staff.