From the Network

A Consumer’s Perspective: “Headed in the Right Direction…” 

A Consumer’s Perspective: “Headed in the Right Direction…” 

My name is Kim Bischoff. I’m the Executive Director of the Neurofibromatosis Network. But most importantly, I’m the mother of Jennifer, who is 34 years old, and she has neurofibromatosis type one. 

My name is Kim Bischoff. I’m the Executive Director of the Neurofibromatosis Network. But most importantly, I’m the mother of Jennifer, who is 34 years old, and she has neurofibromatosis type one. 

In The News

Terminally Ill Gamer’s Wish Comes True

Rockstar Games have granted a terminally ill gamer’s wish to play their upcoming title.

Research

Marker found for condition that causes tumors

UT Southwestern researchers have made a major advance in uncovering the biology.

Event Highlight

10/21/2018 - Las Vegas' NF Hope Concert lit up the Las Vegas strip

LAS VEGAS (KSNV) — A special concert geared to help patients with neurofibromatosis is happening here in the Las Vegas valley.

People Spotlight

Take a deep breath & have faith that everything will be ok

A mother steps out of her comfort zone with the need to let go and share her emotions on Facebook of her daughter's journey of living with NF.


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