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Make a Difference in the Lives of Thousands

Make a Difference in the Lives of Thousands

In The News

Koselugo showed statistically significant and clinically meaningful objective response rate vs. placebo in adults with neurofibromatosis type 1 in global KOMET Phase III trial

Results of a global Phase III trial for Koselugo demonstrated reduction in tumour volume, building on the established safety and efficacy profile of Koselugo in children and supported expanded use in adults.

Research

Neurofibromatosis Type 1 Tumor Early Detection (NF1-TED) Study

Dana Farber-Boston Children's Hospital researchers are conducting a Neurofibromatosis Type 1 Tumor Early Detection (NF1-TED) Study. This study aims to bank samples that can be used to determine whether a blood test can detect malignant peripheral nerve sheath tumors (MPNSTs) in people with NF1 at an early stage than standard clinical care.

Event Highlight

Floating on Hope: A Look Back at This Year's Las Vegas' NF Hope Concert

Las Vegas is the birthplace of our incredible NF Hope Concerts, and this year was one to remember. Joined by incredible talent, long-time supporters, and so many compassionate to the NF cause, it's no wonder it all felt like a dream. Take a look back at Las Vegas' 14th Annual NF Hope Concert, and get ready to end this year in a flurry in Chicago.

People Spotlight

We're Stronger Together, Together We're #NFStrong

Each year, our community and fundraising events bring us to friends, families, and loved ones affected by neurofibromatosis. That work wouldn't be possible without the incredible hard work of our walk chairs and their close supporters. Join us in celebrating these amazing leaders, our sponsors, and all our supporters for making these events a success.


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