From the Network

The word is neurofibromatosis

The word is neurofibromatosis

May is Neurofibromatosis Awareness Month! Spread awareness by joining the #TheWordIs campaign.

May is Neurofibromatosis Awareness Month! Spread awareness by joining the #TheWordIs campaign.

In The News

I lost my voice, but help others find theirs

Being blind wasn't going to stop Alex Hubbard from becoming a journalist, but his NF2 diagnosis almost did.

Research

Washington U professor receives $3.5M grant

David H. Gutmann, director of the Neurofibromatosis Center at the Washing University School of Medicine in St. Louis, was awarded a $3.5 million grant to study NF1.

Event Highlight

NF Hope Concert expands to NYC

When Jeff and Melody Leibow founded the NF Hope Concert in 2011, they dreamed it would be held numerous cities across the country. On May 8 in front of a full house at SubCulture, the first step towards that reality came to fruition with New York City’s inaugural NF Hope Concert.

People Spotlight

NF mother on a mission

Melanie Leach raises NF awareness by organizing walks and bake sales in addition to traveling to D.C. each year to meet congressional staff.


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