The Nation’s Largest Clinic for Neurofibromatosis Helps a Brave Boy Avert Life with a Breathing Tube
Dani and John Boyer knew there was a 50–50 chance that their children might inherit John’s disease.
Bevacizumab Treatment Reportedly Increases Quality of Life in Adults & Children
Study Finds That Bevacizumab Treatment for NF2-Related Vestibular Schwannomas Increases Reported Quality of Life in Adults and Children.
Former "Jersey Boy" Unites Area Talent for NF Hope Benefit on March 29th
Naperville's Wentz Concert Hall will be the site of the third annual benefit concert in the Chicagoland area dedicated to families and individuals affected by Neurofibromatosis (NF).
Mother Fights to Treat Her Family’s Rare Disorder
Amelia and Peter Nobis were both diagnosed with Neurofibromatosis type 2, a rare disorder that causes tumors to grow along the nervous system.