From the Network

Join us at Las Vegas’ 7th Annual NF Hope® Concert!

Join us at Las Vegas’ 7th Annual NF Hope® Concert!

In less than a month, neurofibromatosis families and friends from across the country will gather for the 7th annual NF Hope Concert, Sunday, October 22 at The Palazzo in Las Vegas, Nevada.

In less than a month, neurofibromatosis families and friends from across the country will gather for the 7th annual NF Hope Concert, Sunday, October 22 at The Palazzo in Las Vegas, Nevada.

In The News

Harry Potter star's child diagnosed with NF1

Tansy Smethurst, whose mum Rakie Ayola plays Hermione Granger in the Harry Potter play, was on holiday when she suddenly developed spots on her body and needed to be rushed to hospital.

Research

Study finds increased breast cancer risk

A new study published by Dovepress suggests women with neurofibromatosis type 1 begin screening for breast cancer at age 30 due to increased risk between ages 30 and 50.

Event Highlight

Symposium helps patients connect with experts

During the 5th International RASopathies Symposium, NF patients and families were able to learn more about their disorder, find out about the latest treatments, ask questions, provide input, and most importantly, collaborate.

People Spotlight

Miss Teen Minnesota hopes to inspire others

Grace Grell, who has neurofibromatosis type 1, hopes to inspire others as Miss Teen Minnesota.


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