From the Network

$20M in Federal Funding Secured for NF Research for FY21

$20M in Federal Funding Secured for NF Research for FY21

In The News

The REINS Collaboration Recruiting Patient Representatives

As patients and caregivers of those living with neurofibromatosis, the REiNS Collaboration seeks your help in the fight to cure all types of NF by helping to design clinical trials. Joining the patient representative program is a chance for you to make a difference in finding treatments for NF.


2020 CDMRP NF Research Highlight: Pain in Neurofibromatosis

For the past several years, the Neurofibromatosis Research Program (NFRP) has listed pain as an area of emphasis in its program funding opportunities, encouraging research applications aimed at addressing this critical need in the NF community. Each year, pain research continues to progress with new studies supported by the NFRP.

Event Highlight

Our Sincerest Thanks: NF Network Annual Appeal

In a year full of ups and downs, we are grateful to have your partnership in the fight to end NF. YOU have ensured that we can continue our mission-related initiatives of education and awareness while offering hope and support to those affected by NF.

People Spotlight

Helper Highlight: Meet the Helpers of the NF Network

Without the support of our NF community, the work we do wouldn’t be possible. We are grateful for the involvement of these members of our NF Network family and are inspired by the awareness and compassion they share every day.

Want to view archived newsletters? Click Here!


Sign up to receive the latest neurofibromatosis news and information in your inbox!



Have a story you'd like to share with the NF community? Click Here!