Neurofibromatosis is a complex, lifelong condition that often begins in childhood—but care shouldn’t stop there. In UofL Health’s podcast, they explore how Guneet Sarai, M.D., is working to close a critical gap in care for patients living with Neurofibromatosis.

Exciting new research may help scientists better understand why some individuals with neurofibromatosis type 1 (NF1) experience learning and attention difficulties—and what might be done to help.

May is here, and with it comes an incredible opportunity to bring attention to the neurofibromatosis (NF) community—its strength, its stories, and the powerful momentum behind awareness and advocacy efforts happening across the country from other NF organizations and us.

NF Awareness Month is a time to honor the resilience, courage, and lived experiences of individuals and families navigating neurofibromatosis (NF). This year, we invited members of our community to share their personal stories—and the response was powerful. Each story is different, but together they paint a picture of strength, perseverance, and hope.