Harry Potter star's child diagnosed with NF1
Tansy Smethurst, whose mum Rakie Ayola plays Hermione Granger in the Harry Potter play, was on holiday when she suddenly developed spots on her body and needed to be rushed to hospital.
Study finds increased breast cancer risk
A new study published by Dovepress suggests women with neurofibromatosis type 1 begin screening for breast cancer at age 30 due to increased risk between ages 30 and 50.
Symposium helps patients connect with experts
During the 5th International RASopathies Symposium, NF patients and families were able to learn more about their disorder, find out about the latest treatments, ask questions, provide input, and most importantly, collaborate.
Miss Teen Minnesota hopes to inspire others
Grace Grell, who has neurofibromatosis type 1, hopes to inspire others as Miss Teen Minnesota.