From the Network

Advocating for Federal Funding for NF Research: The NF Network Advocacy Program

Advocating for Federal Funding for NF Research: The NF Network Advocacy Program

In The News

The Nation’s Largest Clinic for Neurofibromatosis Helps a Brave Boy Avert Life with a Breathing Tube

Dani and John Boyer knew there was a 50–50 chance that their children might inherit John’s disease.

Research

Bevacizumab Treatment Reportedly Increases Quality of Life in Adults & Children

Study Finds That Bevacizumab Treatment for NF2-Related Vestibular Schwannomas Increases Reported Quality of Life in Adults and Children.

Event Highlight

Former "Jersey Boy" Unites Area Talent for NF Hope Benefit on March 29th

Naperville's Wentz Concert Hall will be the site of the third annual benefit concert in the Chicagoland area dedicated to families and individuals affected by Neurofibromatosis (NF).

People Spotlight

Mother Fights to Treat Her Family’s Rare Disorder

Amelia and Peter Nobis were both diagnosed with Neurofibromatosis type 2, a rare disorder that causes tumors to grow along the nervous system.


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