SketchNF: My Colorful Life with Neurofibromatosis
In an effort to spread joy and awareness on neurofibromatosis to children and young adults with NF, SketchNF has created a coloring book that illustrates several real stories. Each book purchased allows SketchNF to donate 2 books back to over 30 clinics across the country.
University of Minnesota's Patient Perspective Study for Adults with NF1
Researchers at the University of Minnesota are conducting qualitative study to better understand experiences of families in terms of accessing or receiving treatments for behavioral health concerns. Learn more and see if you qualify.
Coffee for a Cause: The ScullyCoffee4NF Fan Fundraiser
Since 2017, fans of the actress and the TV series The X-Files have organized and implemented a social media-based fundraiser for the NF Network inspired by Gillian Anderson's iconic role as Dana Scully and Anderson's generous spirit.
Meet Sam Leary Award Recipient, Whitney!
Sam Leary was a close friend, a loving son, and a strong advocate for NF research - advocating for himself and the thousands living with NF. In his memory, in partnership with his mother Karen, we are proud to honor his life with the continuation of the Sam Leary Advocacy Scholarship Fund. Meet this year's recipient, Whitney.
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