Contributing to health care reform
Beverly Oberlander, a patient advocate for Neurofibromatosis California, recently participated in a roundtable discussion on health care reform with U.S. Representative Pete Aguilar.
Racing for a cure
Ashley Ihry decided to raise awareness for neurofibromatosis by dusting off her running shoes.
Family helps Pennsylvania woman raise thousands
Yonairis Smith raised more than $2,000 with the help of a team of 20 family members and friends.
One woman’s passionate pursuit to cure NF
Tricia Ratell has worked tirelessly to raise NF awareness and funds to combat the disorder.
UAB clinic provides support for NF families
The NF Clinic at the University of Alabama Birmingham provides diagnosis, genetic testing and counseling, long term follow-up, and management of NF-related problems.