NF Hope Concerts
ABOUT THE NF HOPE CONCERTS
A series of Concerts aimed at ending Neurofibromatosis
Jeff and Melody Leibow created the NF Hope Concerts in 2011 after their daughter, Emma, was diagnosed with Neurofibromatosis (or NF) at the age of nine months old. NF is a genetic disorder of the nervous system characterized by tumors that can grown on any nerve in the body at any time. Symptoms range in severity from benign to severe and include attention and learning issues, blindness, deafness, chronic pain, deformation, cancers and death. NF affects 1 in every 2,500 births making it more common than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined.
The most challenging aspect for families living with NF is that there is currently no cure and no treatments, which means that the only thing we, as parents, can do is wait for something to happen and hope that it never does. For that reason, Jeff and Melody founded the NF Hope Concert in 2011 because neither of them wanted to just wait.
This concert is what they do for Emma and the 128,000 living with NF in the US alone, when in truth, there is very little they can do. The NF Hope Concerts, which started in Las Vegas, have now expanded into New York and Chicago, and 100% of the proceeds from all of them go to Neurofibromatosis Network, a nonprofit dedicated to helping individuals with NF.
UPCOMING NF HOPE CONCERTS AND EVENTS
Gillian Anderson is a long-time supporter of the Neurofibromatosis Network and the NF cause. Following her conversation with NF Hope Concert Co-Founder, Jeff Leibow, during the NF Hope Concert Live Stream, you have the opportunity to win a Zoom session with Gillian Anderson!
The winner of the drawing will receive one 30-minute Zoom session with Gillian Anderson:
- Winner may choose up to 2 friends to join them in their session.
- Date TBD pending Gillian's and the winner's schedules.
- Entry open to anyone globally.
- Entrants must be 18 years of age or older.
- Prior to Zoom session, all participants will be required to sign agreement to not record the Zoom session nor release any unauthorized video or images of the session on social media.
100% of proceeds from the raffle ticket sales benefit the Neurofibromatosis Network and the thousands of families and individuals living with NF.
Thank you for your participation and supporting the Neurofibromatosis Network and the NF community! The Gillian Anderson raffle is now CLOSED. A winner will be drawn on Wednesday, May 20th at 12:00 PM CT.
Questions? Please contact the NF Network office at 630-510-1115 or email firstname.lastname@example.org.
THANK YOU for an INCREDIBLE inaugural NF Hope Concert Live Stream! We have been producing NF Hope Concerts for nearly ten years and in that time, there have been some unforgettable moments. Monday’s live stream was truly magical, celebrating a special evening for our community during NF Awareness Month. The broadcast had more thank 8,000 views and reached 33 different countries, spreading awareness for Neurofibromatosis in ways we only dreamed of.
This would not have been possible without the support of our generous sponsors at SpringWorks Therapeutics, Tito’s Handmade Vodka, Viracon and the RJN Foundation as well as from Florence and Dick Nogaj, Dennis and Joan Pilkinton and everyone who contributed on the night of the live stream.
At the heart of the concert were the incredible performers who contributed their time and talents: James Monroe Iglehart, Debbie Gibson, Dave Koz, Jessy Schram, Jasmine Trias, Erich Bergen, Travis Cloer, Deven May, Kristen Hertzenberg, Ruby Lewis, Austin Gatus, Delious Kennedy, Quinn VanAntwerp, Mackenzie Bell, Denise Hoey, Kim Shriver, Jolana Sampson, Sarah Corey, Jamie Karen, Ben Hale, Avery Rausch, Mark Vogel and Robby Wingfield.
Most important of all, we are grateful for our followers, family and friends who not only joined us from their computers and TV and phones on Monday, but have joined us at NF Hope Concerts over the last ten years. Thank you for your never ending support.
You can still make a difference in the lives of thousands at nfhope20.givesmart.com through the end of May. More live performances and videos will be streamed throughout NF Awareness Month on the NF Hope Concert Facebook page and YouTube channel. Thank you for your continuing to support us and for making a difference in the NF community!