Understanding Neurofibromatosis 3rd Edition
James H. Tonsgard, MD
NF Network
NF Network
Understanding Your Child's Diagnosis of NF
Washington University Physicians
A child's perspective of Neurofibromatosis
NF Network
Clinical Manifestations Of NF1
James H. Tonsgard, MD
John Hopkins
Scott Hunter, PhD, Jim Tonsgard, MD
Insurance Coverage for Neurofibroma Removal
NF Midwest
Robert Listernick, MD Children's Hospital of Chicago
Cynthia Hingtgen, MD, PhD
Reproductive Options for People with NF
Amanda Bergner, MS CGC, John Hopkins University
Neuropsychological Evaluations for Children with NF1
Jill Isenberg, PhD., ABPP; St. Louis Children's Hospital
Pain in Neurofibromatosis Type 1
Staci Martin Peron, PhD and Andrea Baldwin, CRNP
NF Network
National Institute of Neurological Disorders & Stroke
Leigh Hart, RN, CCRN, PhD
Medical Genomics Laboratory
UAB School of Medicine
NF Midwest
Request an NF2 information packet by mail
Understanding Neurofibromatosis Type 2
John & Linda Manth
Scott Plotkin, MD, PhD
Hearing Improvement after Bevacizumab in Patients with NF2
Scott R. Plotkin, M.D., Ph.D., Anat O. Stemmer-Rachamimov, M.D., Fred G. Barker II, M.D., Chris Halpin, Ph.D., Timothy P. Padera, Ph.D., Alex Tyrrell, Ph.D., A. Gregory Sorensen, M.D., Rakesh K. Jain, Ph.D., and Emmanuelle di Tomaso, Ph.D.
Hearing Restoration in Neurofibromatosis Type II Patients
Jeon Mi Lee , Jin Woo Chang , Jae Young Choi , Won Seok Chang , and In Seok Moon
Derald E. Brackmann, M.D. House Ear Institute Los Angeles
These websites and organizations are offered for the purpose of providing patients, families, and friends with information and resources that may be helpful in understanding NF2.
Reproductive Options for People with NF
Amanda Bernger, MS CGC, Johns Hopkins University
Provided by NF Midwest
Mia MacCollin & Victor-Felix Mautner
National Institute of Neurological Disorders & Stroke
Understanding Neurofibromatosis
Comer Children's Hospital-University of Chicago
Psychological distress in people with disfigurement from facial palsy
School of Medicine, University of Manchester, UK
Your Child's Diagnosis of Neurofibromatosis
St. Louis Children's Hospital
Addressing Academic Concerns: A Guide for Parents of Children With Neurofibromatosis (NF)1
Washington University in St. Louis/Children's Hospital St. Louis
Addressing Executive Function: A Guide For Parents of Children With Neurofibromatosis 1
Washington University in St. Louis/Children's Hospital St. Louis
Living with Neurofibromatosis 1: A Guide for Adults
Washington University in St. Louis/Children's Hospital St. Louis
Telling People You Have Neurofibromatosis 1
Washington University in St. Louis/Children's Hospital St. Louis
Talking About Neurofibromatosis: A Guide for Teens
Washington University in St. Louis/Children's Hospital St. Louis
Transitioning to Adulthood: A Guide for Individuals with NF1
Washington University in St. Louis/Children's Hospital St. Louis
Nicole Weckherlin, OTR/L St. Louis Children's Hospital
Nicole Weckherlin, OTR/L St. Louis Children's Hospital
