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Neurofibromatosis Network

Leading NF Advocacy
Building NF Community

Educational Materials

 

Understanding Neurofibromatosis 3rd Edition

James H. Tonsgard, MD

 

 

 

 

 


 

 

NF Network Brochure

NF Network

 

Clinical Care Options

NF Network


Understanding Your Child's Diagnosis of NF

Washington University Physicians

 

 

 

 

 

 

 


NF Buddies

A child's perspective of Neurofibromatosis

 

 

 

 

 

 


Increased Breast Cancer Risk in Women with NF1

Bev Oberlander, Dr. Bruce Korf, NF Network

Increased Breast Cancer Risk in Women with NF1Fact Sheets

Childhood Tumour Trust, Springworks, NF Network

 

Bullying Help Sheet

Stopbullying.gov provides tips, resources, and legislation language to act on your child's behalf in their school. 

 NF1 Body Sheet

NF Network

Insurance Coverage for Neurofibroma Removal

NF Midwest

Optic Pathway Gliomas

Robert Listernick, MD Children's Hospital of Chicago

Vascular Disease in NF1

Cynthia Hingtgen, MD, PhD

NF Helpful Resources

NF Network

UAB Genetic Testing Brochure 

Medical Genomics Laboratory

UAB Genomics Lab Website

UAB School of Medicine

 

Request an NF2 information packet by mail

Understanding Neurofibromatosis Type 2 

John & Linda Manth

Scott Plotkin, MD, PhD

 

 

 

 

Bullying Help Sheet

Stopbullying.gov provides tips, resources, and legislation language to act on your child's behalf in their school. 

Insurance Coverage

Provided by NF Midwest

 

NF Helpful Resources

NF Network Brochure

NF2 Body Sheet

UAB Genetic Testing Brochure

UAB Genomics Lab Website

 

Your Child's Diagnosis of Neurofibromatosis

St. Louis Children's Hospital

 

Addressing Academic Concerns: A Guide for Parents of Children With Neurofibromatosis (NF)1

Washington University in St. Louis/Children's Hospital St. Louis

 

Addressing Executive Function: A Guide For Parents of Children With Neurofibromatosis 1

Washington University in St. Louis/Children's Hospital St. Louis

 

Living with Neurofibromatosis 1: A Guide for Adults

Washington University in St. Louis/Children's Hospital St. Louis

 

Telling People You Have Neurofibromatosis 1

Washington University in St. Louis/Children's Hospital St. Louis

 

Talking About Neurofibromatosis: A Guide for Teens

Washington University in St. Louis/Children's Hospital St. Louis

 

Transitioning to Adulthood: A Guide for Individuals with NF1

Washington University in St. Louis/Children's Hospital St. Louis

 

iPad Apps for the Classroom

Nicole Weckherlin, OTR/L St. Louis Children's Hospital

 

Functional Apps

Nicole Weckherlin, OTR/L St. Louis Children's Hospital

 

iPad Basics

Jot Not and Annotate Apps

Tech Finder: Expert-approved apps & games for your child