NF Awareness Month Is Almost Here—And It’s Bigger, Bolder, and More Inspiring Than Ever

May is NF Awareness Month, and communities across the country are coming together in powerful ways to support those affected by neurofibromatosis (NF). From walks and races to art shows and live music, this year’s lineup of events offers something for everyone—whether you’re looking to get active, get creative, or simply show your support.

Steps2Cure NF: Moving Forward Together
Get ready to lace up, show up, and stand up for a cause that’s about so much more than just a walk. Steps2Cure NF events are taking place in 10 vibrant communities across the Northeast, bringing people together in high-energy, hope-filled gatherings. These events are more than just miles walked—they’re moments of connection, support, and strength. Whether you’re participating, volunteering, fundraising, or cheering from the sidelines, you’re helping fuel critical research and bring us closer to a future without NF. Find your walk here.

Colorado Gathering at Hudson Gardens – May 3
Kick off the month with a relaxed and welcoming community gathering on Sunday, May 3 from 11:00 a.m. to 2:00 p.m. at The Hudson Gardens in Littleton, CO. Enjoy lunch together and take in the beauty of the gardens while connecting with others in the NF community. Register here.

Quack for a Cure: Ducky Dash 5K – May 16
One of the most anticipated events of the season returns to Lake Herrick in Wheaton, IL! Check-in begins at 8:00 a.m., and the race starts at 9:00 a.m. Whether you’re running the 5K or joining the fun walk, this event is all about community and creativity. Participants are encouraged to go all out with duck-themed costumes—think swim fins, snorkels, inflatable ducks, and more! After the race, stick around for awards, ducky games, and a lively celebration for the whole family. Register here.

NF Michigan Art Show & Fun Walk – May 16
Also on May 16, head to McGraft Park in Muskegon, MI for the 2nd Annual NF Michigan Art Show & Fun Walk. This family-friendly event blends creativity and community with a relaxed walk, local art and craft vendors, and a silent auction. What began as a small gathering is quickly becoming a cherished tradition, with all proceeds supporting NF research and awareness efforts. Register here.

Rockin for a Cure – May 16-17
The Rockin’ Hops Music Festival, held at Solano Brewing in Vacaville, CA, is a community event aimed at raising awareness about Neurofibromatosis and supporting NF California. This year’s 4th Annual Rockin’ Hops features a two-day music festival with nine bands performing, all generously donating their time to this important cause. The event is family-friendly and has no cover charge, making it accessible to everyone. Many attendees will be learning about Neurofibromatosis for the first time at this festival. In addition to vendor booths, there will be a dedicated Neurofibromatosis booth providing educational materials. More information here.

NF Strong Spring Concert – May 29
Wrap up the month with music, laughter, and community at the NF Strong Spring Concert in Woodstock, GA. Held on May 29 from 5:30 to 9:30 p.m. at Woodstock Arts Event Green, this lively evening features dueling pianos from Music and Mayhem. Bring a picnic, enjoy refreshments, browse the silent auction, and sing along under the stars—it’s a night you won’t want to miss. Get tickets here.

Kansas City 5K Celebration – May 30
Close out NF Awareness Month on May 30 in North Kansas City, MO with a celebratory 5K at Macken Park. Registration opens at 9:00 a.m., with the race beginning at 10:00 a.m. This year marks 15 years of community impact in Kansas City, and the event promises fun for all ages—including entertainment, raffles, refreshments, and the return of the fan-favorite foam party! Register here.

No matter where you are, there’s a way to get involved this May. Each step taken, dollar raised, and moment shared helps bring hope to individuals and families living with NF. Together, we’re building awareness, advancing research, and creating a stronger, more connected community.

Join us. Support the cause. Be part of something meaningful. For a full list of upcoming events, visit here. 

 

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