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Neurofibromatosis Network

Leading NF Advocacy
Building NF Community



Join our mission to find treatments and a cure for neurofibromatosis.

Sign up to get involved and Stay iNFormed.

Welcome to the Neurofibromatosis Network; we’re glad you found us! On this site you can:

  • find knowledgeable physicians to provide accurate and sympathetic NF care
  • discover educational materials and webinars appropriate to share with family members and your child’s school
  • find the nearest NF group offering educational meetings and events
  • browse our Clinical Care Options tool for a specialist to consult on care management
  • sign up for our email list to receive timely NF news and information
  • join with the over 17,000 NF individuals who share thoughts, build friendships and help each other through their NF journey
  • join the Network in the ongoing quest for federal funds for NF research
  • read the Network Edge to learn how NF research dollars translate to exciting scientific discoveries
  • join us at the NF Hope Concerts in Las Vegas, Chicago, and New York
  • participate in #NFStrong walks, golf outings and other community events around the country throughout the year
  • contribute to our mission of leading NF advocacy and building NF community

Hope. That is what the NF Network is all about - hope for a brighter future for all those affected by neurofibromatosis. and hope for that marvelous day when the cure is finally found. 

We would love to hear from you! Give the NF Network office a call 630-510-1115 or email us


Joining you in Hope,

Kim Bischoff
Executive Director
The NF Network
Leading NF Advocacy, Building NF Community