The U.S. FDA has approved Koselugo for treatment of plexiform neurofibromas in pediatric NF1 patients.
Read the StatementA message from Kim Bischoff, Executive Director, about the health and safety of our NF community and a reminder that we are still here to help.
Read the Update
RSVP We’re going virtual! Our number one priority is always the health and safety of our NF community. In light of the COV read more
Links for Lauren is an annual golf outing and reception that raises research funds and increases awareness for Neurofibromato read more
Save the date for our 3rd Annual Docs Rock for NF Concert! Saturday, August 29th, 2020 Blue Bamboo Center for the Arts 19 read more
Saturday, August 29, 2020 Registration and check-in begin at 9:00 am 5K Walk/Run begins at 10:00 am Boardman Park read more
