House Appropriations Committee Recommends $25 Million for NF Research Program

We have exciting news to share with the NF community!

The House Appropriations Committee has included $25 million for the Congressionally Directed Medical Research Program's Neurofibromatosis Research Program (NFRP) in its Fiscal Year 2027 Defense spending bill.

This marks the first major milestone in securing FY27 federal funding for NF research and is an encouraging step forward for our community.

This progress would not have been possible without the incredible dedication of our advocates. To everyone who traveled to Washington, D.C., participated in Advocacy Day this February, sent emails, shared your story, or contacted your legislators—thank you. Your voices made a difference, and this recommendation reflects the strength and unity of the NF community.

While this is an important victory worth celebrating, the process is not yet complete. The Senate Appropriations Committee must still consider its version of the bill, and any differences between the House and Senate bills will need to be resolved before the funding is finalized and signed into law. We will continue to keep you informed as the appropriations process moves through Congress over the coming months.

For today, however, we encourage our community to celebrate this significant achievement. This recommendation demonstrates Congress' continued recognition of the importance of NF research and the impact that sustained federal investment has on advancing scientific discoveries and bringing new treatments closer to reality.

To every patient, family member, advocate, researcher, clinician, and supporter who has raised their voice in support of NF research—thank you. Together, we have cleared the first major hurdle on the path to FY27 funding, and we look forward to continuing the work ahead.

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