$20M in Federal Funding Secured for NF Research for FY21

Author: NF Network, Breanna Bronowski-Stutsman
Published On: 01/11/2021

Thanks to your advocacy efforts, we are pleased to announce that $20 million in federal funding has been secured for the Congressionally Directed Medical Research Program - Neurofibromatosis Research Program (CDMRP-NFRP) for Fiscal Year 2021.

THANK YOU for your continued advocacy efforts and your support of the NF Network Advocacy Program. Together, with your help, we are able to continue educating congressional offices on the importance of these federal research dollars for NF research and help accelerate the search for treatments and a cure to end neurofibromatosis.

In February, the NF Network Advocacy Program will virtually storm the halls of Congress to advocate for Fiscal Year 2022 funding for NF research. Advocates participating in this program have been the voice of the NF community on Capitol Hill for over 20 years and have been instrumental in generating over $382 million dedicated to NF research

As we prepare for another year of meetings, we want to ensure that your voice is heard on Capitol Hill. Our advocates will be meeting with hundreds of offices and would like to share your story with your representatives. You can help us be one voice in D.C. by emailing your NF story to admin@nfnetwork.org, or you can start by viewing sample letters under the “Become and Advocate” tab here.

Your support helps ensure that we can continue fighting and advocating for better treatments and a cure to end neurofibromatosis. We thank you for being a part of one voice for the NF community, and we celebrate with you in this success! We did it!


To learn more about the NF Network Advocacy Program, please visit the Advocacy page on our website here.

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