Thank You, Together We're Making a Difference!

Author: NF Network

Published On: 01/27/2023

As the NF Network has grown and evolved in this new environment, your compassion and generosity have been unwavering during this extraordinary time. With your help, we have been able to continue providing essential programs and resources to our NF community and introduce new areas of support to our NF friends and families.

Each year, the NF Network serves over 10,000 NF friends and supporters of the NF cause and connects with over 1,200 new NF families, including Willow's, John's, Max's, and Peyton and Keltyn's. Every new family's questions vary case by case, but all of them end the same - a need for support, resources, answers, and most of all hope. 

Whether our NF friends and families seek counsel regarding their diagnosis of neurofibromatosis, or request educational information or NF specialist referrals, the NF Network continues to serve our community with opportunities to educate, advocate, and connect.

The NF Network Advocacy Program continues their work in Washington, D.C. to secure necessary funding for important advancements in neurofibromatosis research. Since 1996, our program has played a vital role in securing over $402M in federal research funding for NF. While we were unable to travel in-person to deliver our message to Congress, over 78 advocates from across the country conducted their congressional meetings from home and educated over 240 offices on the importance of these funds. Our advocates will return in-person in February 2023 to continue delivering your stories and sharing our requests for funding.  

In changing times, we are grateful to have your partnership in the fight to end NF. YOU have ensured that we can continue our mission-related initiatives of education and awareness while offering hope and support to those affected by NF.

From the bottom of our hearts, we THANK YOU for sharing your compassion and generosity with the NF Network and joining us on this journey as we continue our mission: “to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.”

Learn more about our mission and why we do what we do here.