A Heartfelt Thank You from the NF Network

Author: NF Network

Published On: 01/18/2024

As the NF Network continues to grow and evolve, your compassion and generosity have been unwavering during this extraordinary time. With your help, we have been able to continue providing essential programs and resources to our NF community and introduce new areas of support to our NF friends and families.

Each year, the NF Network serves over 10,000 NF friends and supporters of the NF cause and connects with over 1,200 new NF families, including Autumn's. Every new family's questions vary case by case, but all of them end the same - a need for support, resources, answers, and most of all hope. 

Whether our NF friends and families seek counsel regarding their diagnosis of neurofibromatosis, or request educational information or NF specialist referrals, the NF Network continues to serve our community with opportunities to educate, advocate, and connect.

The NF Network Advocacy Program continues their work in Washington, D.C. to secure necessary funding for important advancements in neurofibromatosis research. Since 1996, our program has played a vital role in securing over $420M in federal research funding for NF. Each year, our advocates meet with over 220 Congressional offices, sharing your stories and making our voices heard to continue essential funding for NF research. We will return in February to continue the fight to end NF.

We are grateful to have your partnership in our journy for better treatments and a cure for neurofibromatosis. YOU have ensured that we can continue our mission-related initiatives of education and awareness while offering hope and support to those affected by NF.

From the bottom of our hearts, we THANK YOU for sharing your compassion and generosity with the NF Network and joining us on this journey as we continue our mission: “to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.”

Learn more about our mission and why we do what we do here.