Thank You for Making a Difference

Author: NF Network, Breanna Bronowski-Stutsman

Published On: 01/18/2022

Over the past 2 years, we’ve seen firsthand how you’ve shared your compassion and generosity with the Neurofibromatosis Network during this extraordinary and pivotal time. With your help, we have been able to continue providing essential programs and resources to our NF community and introduce new areas of support to our NF friends and families.

Each year, the NF Network serves over 10,000 NF friends and supporters of the NF cause and connects with over 1,200 new NF families, including the Berens family. Every new family's questions vary case by case, but all of them end the same - a need for support, resources, answers, and most of all hope. 

Whether our NF friends and families seek counsel regarding their diagnosis of neurofibromatosis, or request educational information or NF specialist referrals, the NF Network continues to serve our community with opportunities to educate, advocate, and connect.

In addition to our continued programs and resources, the NF Network embraced the changing formats and transitioned and transformed to the digital world. Seeking new ways to connect, we hosted 24 online events and served over 2,629 individuals and 1,382 families virtually.  

In 2021, the NF Network Advocacy Program celebrated 25 years of advocacy work in Washington, D.C. Since 1996, our program has played a vital role in securing over $382M in federal research funding for NF. While we were unable to travel in-person to deliver our message to Congress, over 78 advocates from across the country conducted their congressional meetings from home and educated over 240 offices on the importance of these funds.   

In changing times, we are grateful to have your partnership in the fight to end NF. YOU have ensured that we can continue our mission-related initiatives of education and awareness while offering hope and support to those affected by NF.

From the bottom of our hearts, we THANK YOU for sharing your compassion and generosity with the NF Network and joining us on this journey as we continue our mission: “to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.”

Learn more about our mission and why we do what we do here.