Growing Together: Thank You for Standing With the NF Community

Author: NF Network

Published On: 01/8/2026

As the NF Network continues to grow and evolve, one thing has remained constant—your compassion and generosity. During an extraordinary and often challenging time, your support during our Annual Appeal has made it possible for us to continue providing essential programs and resources, while also expanding new areas of support for our NF friends and families.

Each year, the NF Network serves more than 10,000 individuals connected to the NF community and welcomes over 1,200 newly diagnosed families. While every family’s journey with neurofibromatosis is unique, their needs often lead to the same place: a search for support, trusted resources, answers, and—most importantly—hope.

Whether individuals reach out with questions about a new NF diagnosis, seek educational materials, or need referrals to NF specialists, the NF Network is here to help. We remain committed to creating opportunities to educate, advocate, and connect, ensuring no one has to navigate NF alone.

Our Advocacy Program continues its critical work in Washington, D.C., championing increased federal funding for neurofibromatosis research. Since 1996, this program has helped secure more than $400 million in federal research funding for NF. Each year, our advocates meet with over 220 Congressional offices, sharing patient and family stories and making sure the voices of the NF community are heard. We will return to Capitol Hill this February to continue the fight to end NF.

We are deeply grateful for your partnership on this journey toward better treatments and, ultimately, a cure. Because of you, the NF Network can continue advancing education and awareness while providing meaningful support and hope to those affected by neurofibromatosis.

From the bottom of our hearts, thank you for standing with the NF Network and for being an essential part of our mission:

To find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, and offering hope and support to all those affected by NF.

Learn more about our mission and why we do what we do here.

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