Get Ready for Giving Tuesday!

Author: Breanna Bronowski-Stutsman

Published On: 11/12/2019

As we grow closer and closer to the end of another year, we at the NF Network wanted to take a moment to say thank you for what an incredible year 2019 has been, and how you played a crucial part in our success.

In February, over 80 advocates joined the NF Network Advocacy Program in Washington D.C. to educate Congress on the importance of securing federal funding for neurofibromatosis research. Our 83 advocates came together as our largest NF Network Advocacy group to date! The spring and summer months brought coffee chats, new #NFStrong events, and NF Hope Concerts that connected us with new NF families and individuals from all across the country. Over the course of 2019, the NF Network touched the lives of over 2,000 individuals affected by neurofibromatosis.

Now as we approach the end of fall and beginning of winter, we are excited to launch an exciting new program, the Chromosome Club, on this year’s Giving Tuesday, December 3^rd. In 2018, you helped us go above and beyond our original goal of $10,000 by raising $17,643.76.  This allowed us to help hundreds of newly diagnosed NF families and individuals by providing them educational material, referrals to NF clinics and specialists, and connecting them with other local support.

This year, our goal is the same – to raise $10,000 by the end of 2019 to be ready to serve the 1,600 new babies that will be diagnosed with NF in 2020. Without your support, we couldn’t possibly continue our mission to find better treatments and a cure to end neurofibromatosis.

We thank you for ensuring our future and hope you will join us in supporting the NF Network again this Giving Tuesday!