Announcement: FY21 “Dear Colleague” Letter Signers

Author: NF Network, Breanna Bronowski-Stutsman

Published On: 04/01/2020

Back in February, 94 advocates from across the United States participated in the Neurofibromatosis Network Advocacy Program where we descended on Capitol Hill and educated the offices of Congress about their important role in continuing NF research.

Upon our return, we asked YOU to write to YOUR members of Congress and request they sign on to the House and Senate "Dear Colleague" letters in support of $20M in federal research funding for NF. With your help, we had 158 House signatures and 22 Senate signatures on these letters! See below the representatives who signed on:

Thank you to all of the members of Congress who supported our advocacy efforts by signing on to these "Dear Colleague" letters, and thank you to our community for emailing and requesting their signatures. Please consider reaching out and thanking your representatives for their support of this important step in securing federal funding for NF research. Together, we grow even closer to finding better treatments and a cure to end neurofibromatosis. Thank you for raising your voice for neurofibromatosis research!