Living with NF2: Abby’s Story of Brain Tumors, College & Accessibility Advocacy

Author: University of Virgina
Published On: 05/14/2019

During my sophomore year of high school, I was diagnosed with neurofibromatosis 2 (NF2). NF2 is characterized by bilateral vestibular schwannomas, a type of benign tumor, near the brainstem. But in many cases, as was mine, there are other benign tumors in the body.

In my case, my doctor removed what we thought was a mole. He had treated someone with neurofibromatosis before and recognized my spot as a possible symptom. So he scheduled an MRI, and during that, found several additional tumors indicative of NF2.

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