A Center of Excellence and Hope for Neurofibromatosis Patients

Author: Lurie Children's Blog

Published On: 03/26/2019

“Dr. Robert Listernick, co-director of the Neurofibromatosis Clinic at Ann & Robert H. Lurie Children’s Hospital of Chicago, is often referred to by our team as an NF-ologist. In addition to his 34 years of dedicated care of children, adolescents, and young adults with NF1, he is also an avid researcher with contributions in over 41 NF1 scientific publications. He has been a mentor to me and an inspiration daily in my five years working with him in our NF1 clinic,” says Allison Goetsch, Genetic Counselor and Neurofibromatosis Clinic Coordinator.

On Sunday, April 7th, 2019 at Chicago’s 2nd annual NF Hope Concert, Dr. Listernick will receive the coveted 2019 Advocate of Hope Award. The NF Advocate of Hope award is presented annually to an outstanding individual who has significantly impacted the lives of children and adults with neurofibromatosis.  Dr. Listernick was humbled upon learning of his selection.

“I am touched and honored beyond words to have been thought of for this honor. The greatest privilege of my professional career has been my involvement with the NF community–the children, families and colleagues around the world. I have been so fortunate to work at Lurie Children’s with our incredible collection of caregivers.”

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