The word is neurofibromatosis

Author: Sarah Wise
Published On: 05/21/2017

May is Neurofibromatosis Awareness Month! The Neurofibromatosis Network is calling on the more than 100,000 Americans with NF to share their stories and spread NF awareness.

Neurofibromatosis is more prevalent than cystic fibrosis, hereditary muscular dystrophy, Huntington’s disease, and Tay-Sachs combined, yet most people have never heard of it. Those who have often have trouble pronouncing it.

This month you can spread awareness by joining #TheWordIs campaign.

  1. Add #TheWordIs frame to your Facebook profile picture. Click here to get started.
  2. Record a video to teach your friends how to pronounce neurofibromatosis. Don't forget to use #TheWordIs and tag the NF Network.
  3. Purchase a #TheWordIs t-shirt.
  4. Make a donation to the NF Network.

Watch the NF Network say the word

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