Regina Vasquez Runs 5K to Support Neurofibromatosis Research

Published On: 11/10/2019

The 8th Annual #NFStrong 5K for Neurofibromatosis takes place on Saturday, November 16, at Blanchard Park, 2451 Dean Road, Orlando, FL 32817. The goal of these strong communities is to rally together and become one great voice in finding effective treatments and a cure for neurofibromatosis, a genetic disorder of the nervous system.

“I want to bring awareness to neurofibromatosis because it is one of the most common genetic disorders in the United States,” said Vasquez, who has participated in the event since her daughter was diagnosed with NF1 six years ago. “This makes neurofibromatosis more prevalent than cystic fibrosis, hereditary muscular dystrophy, Huntington’s disease and Tay-Sachs combined, yet hardly anyone has heard of it and there is no cure.”

The NF Network is the leading national organization advocating for federal funding for NF research. Its goal is to eradicate the health issues, pain, isolation and uncertainty that the diagnosis of NF inflicts. Since 1996, the NF Network has played a vital role in securing over $300 million for NF research. Events like #NFStrong provide support, raise awareness, and inspire hope as the NF Network continues its efforts for better treatments and a cure for NF.

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