Opportunity to Participate in an Independent Research Study to Tell Your NF1-PN Story

Author: Bryter
Published On: 11/12/2023

Bryter, an independent research company, is conducting a research study to understand about the lives of those (caregivers / patients) living with NF1-PN. The research is being sponsored by a pharmaceutical company and is designed to give the NF1-PN community the opportunity to tell their story about the lived experience.

Study Overview:

  • Stage 1: Short questions/tasks completed via your smartphone (approx. 2.5h over 2-3 weeks)
  • Stage 2: Interview completed via Zoom or in-person (lasting 1.5h – 2.5h)

All participants will be paid for their time: $250 for Stage 1, and an additional $150 - $250 for those taking part in Stage 2. If you are interested in taking part, please use the link below for more information, and to complete a short qualification questionnaire that will take 5 minutes. 

Registration survey: www.nf1-research.com  

The study is anonymous - none of your personal details will be passed to the sponsor or any other organization without your consent. Details of our privacy policy, and guidelines are provided on the registration page. If you have any questions, please contact asha.cumberbatch@bryter-us.com.

Want to view archived newsletters? Click Here!


Sign up to receive the latest neurofibromatosis news and information in your inbox!



Have a story you'd like to share with the NF community? Click Here!