Man who wears prosthetic eye due to rare condition hopes his story can inspire others

Author: Katie Dollard, Indy100
Published On: 08/01/2023

Amit Ghose, 33, from Birmingham, was diagnosed with neurofibromatosis type 1, also commonly known as NF1, when he was two years old. The rare genetic condition causes tumours to grow along your nerves, which for Amit, grew on the left side of his face and on his eye – leading to it needing to be removed when he was 11.

The 33-year-old shares his experience of the condition on TikTok with his 66,400 followers (@amitghose), where a recent video went viral with 4.5 million views. In the clip, Amit showed how he puts on and takes off his prosthetic, which perfectly matches his skin tone and looks incredibly realistic.

But despite his unique appearance, the man insists he is comfortable with how he looks.

Read more on Amit's story. 

Want to view archived newsletters? Click Here!


Sign up to receive the latest neurofibromatosis news and information in your inbox!



Have a story you'd like to share with the NF community? Click Here!