Being Different is Beautiful: Caroline's Story
Author: Caroline Hunt
Published On: 04/28/2022
Every year in May, the NF community around the world comes together to spread awareness about neurofibromatosis during NF Awareness Month. Affecting every 1 in 2,500 births, neurofibromatosis is the most common genetic disorder that most have never heard of. Our mission each May and every day is to help make neurofibromatosis a household name where the world can know what NF is.
This year for NF Awareness Month, we need your help to spread the word! Neurofibromatosis affects each individual differently – no two cases of NF are the same. The variances of NF can make navigating NF care challenging, and one can never be 100% sure of what comes next. However, in those variances and differences, we find that being different is beautiful.
With the help of our friend, Caroline Hunt, we want to help spread the word that “Being Different is Beautiful.” Caroline has NF1 and has used her platform in the pageant circuit to not only raise awareness of neurofibromatosis, but also share her story and challenges with communities across the country.
Because of the challenges she has overcome and the impact she has made raising NF awareness in the pageant circuit and beyond, we are honored to award Caroline this June with the Paul Bodner Memorial Award at Chicago's 3rd Annual NF Hope Concert.
Caroline’s story is one of many in our NF community, and we want to hear from you! Throughout the month of May, we want to share your NF stories and spread awareness through the many beautiful faces of our NF community. Using the hashtag #BeingDifferentIsBeautiful, you can post your story on social media, or email your story to us at firstname.lastname@example.org. We would love to see pictures of you and your family, as well as other ways you are celebrating and spreading awareness for NF Awareness Month,
We hope you’ll join us in spreading the word that #BeingDifferentIsBeautiful!