From the Network

Together We Are #NFStrong!

Together We Are #NFStrong!

In The News

Vanderbilt Studying Reading Challenges in NF1

Researchers at Vanderbilt University are seeking to understand challenges our NF community faces in reading comprehension and new ways to teach reading-related skills. Children and adults who qualify for the study will be introduced to a reading tutoring program and 1 of 2 groups will also receive a medication, Lovastatin.


Recursion Announces Initiation of Phase 2/3 Trial for the Treatment of NF2-Mutated Meningiomas

Recursion has announced the initiation of its Phase 2/3 POPLAR-NF2 clinical trial evaluating REC-2282: a potentially first-in-disease treatment for progressive neurofibromatosis type 2 (NF2)-mutated meningiomas.

Event Highlight

MGH and Harvard Conducting Resilient Youth with NF Study

Researchers at Massachusetts General Hospital and Harvard University are conducting a Department of Defense-funded a research study to compare two programs that teach stress and symptom management skills for adolescents with NF1, NF2, or schwannomatosis. Teens ages 12-17 are invited to participate in this virtual program.

People Spotlight

PEERS® for Adolescents

PEERS® for Adolescents is an evidence-based social skills intervention for motivated teens in middle and high school who are interested in learning skills for making and keeping friends, handling conflict and rejection. Led by the University of Wisconsin-Milwaukee and the University of Minnesota, researchers want to examine how PEERS® can be helpful for those with NF1.

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