From the Network

Knowledge is Power, Stay iNFormed

Knowledge is Power, Stay iNFormed

In The News

Treatment Options and Management of NF1 Related Plexiform Neurofibromas

Dr. Kaleb Yohay, MD joins NeurologyLive for an educational video series dissecting care for a range of patient ages diagnosed with NF1 plexiform neurofibromas, including identifying current treatment options and the importance of multi-disciplinary care.

Research

Neurofibromatosis Type 1 Tumor Early Detection (NF1-TED) Study

Dana Farber-Boston Children's Hospital researchers are conducting a Neurofibromatosis Type 1 Tumor Early Detection (NF1-TED) Study. This study aims to bank samples that can be used to determine whether a blood test can detect malignant peripheral nerve sheath tumors (MPNSTs) in people with NF1 at an early stage than standard clinical care.

Event Highlight

NF Hope Concert Returns to Homebase for 14th Year!

The NF Hope® Concert was born in Las Vegas, and now it is back for the 14th time! Inspired by the Emma Leibow, the daughter of former JERSEY BOYS star Jeff Leibow and his wife, Melody Leibow, this concert continues to raise funds and awareness to communities across the country.

People Spotlight

A Tale of Two Travels - Takeaway on NF Discrimination and Air Travel

Charles Dickens' famous novel, A Tale of Two Cities, reads: "It was the best of times, it was the worst of times, it was the age of wisdom, it was the age of foolishness…" Like this concept of duality, we explore two divergent stories that shed light on the experiences of two brave women who recently traveled by air through California after undergoing surgery to remove neurofibromas, as well as share resources for potential future travel.


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