Dr. Brent K. Young from Stanford University School of Medicine located in Palo Alto, California was awarded a $90,000 grant for his research entitled: Survival and regeneration of retinal ganglion cells in NF1.

SpringWorks' breakthrough therapy, mirdametinib, has been submitted to the US FDA through a New Drug Application for the treatment of NF1-PNs in children and adults.

The #NFStrong 5K in Boardman, OH celebrated its 11th year in late June. Joined by lots of familiar and friendly faces, Jenn Krawchyk's dedication to continuing to bring this community together shows how important it is to have a place to meet, mingle, and support each other through life's constant changes and challenges.

Shane Smith wanted to know anything and everything about NF1 when his son was diagnosed. Collecting hundreds of articles and amassing countless information, Shane began to connect with peers and professionals in the NF field. Using the information he's collected and people he's met, Shane is now sharing is findings in a first of its kind podcast, Decoding NF.