From the Network

Thank You for Celebrating NF Awareness Month!

Thank You for Celebrating NF Awareness Month!

In The News

Neurofibromatosis: Chloe's Story

Chloe, who was diagnosed with NF1 at age 2, was at Johns Hopkins All Children’s Hospital in St. Petersburg, Florida, when she realized the hospital stay would mean missing her senior prom. When nurses heard how the stay would interfere, they sprang into action.

Event Highlight

2nd Annual SketchNF Auction Now Open!

SketchNF is dedicated to raising funds and creating a network for pediatric NF patients one sketch at a time. Their mission is to empower children with NF by allowing them to share their stories and hopes through the form of art. Join us for the 2nd annual auction now!

People Spotlight

Meet NF Runner, Tim!

Timothy Gross, who has been running for the last seven years despite his hearing loss due to neurofibromatosis, will lead a charity race to raise awareness for NF this month.


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