Gov. Charlie Baker declares May NF Awareness Month
On May 1 Massachusetts Governor Charlie Baker and Lieutenant Governor Karyn Polito signed a proclamation officially declaring May Neurofibromatosis Awareness Month.
Confronting the Challenge of Neurofibromatosis
Neurofibromatosis as a name encompasses at least three diseases in fact. They are called neurofibromatosis type one, neurofibromatosis type two, and Schwannomatosis.
Stone Lotus plays at Inaugural Docs Rock for NF concert
On a warm Saturday evening in early June at the Orlando Shakespeare Theater, more than 125 people gathered for the inaugural Docs Rock for NF concert
Living with NF1: Jeff Colatruglio
My name is Jeff Colatruglio, I am 32 years old and this is my life.