From the Network

House Appropriations Bill Includes $20M for NF Research

House Appropriations Bill Includes $20M for NF Research

In The News

CFC Opens Special Solicitation for COVID-19

In light of the ongoing pandemic, members of several federal departments and agencies sought ways to do more to help during COVID-19. The Combined Federal Campaign has opened a special solicitation to aid CFC-approved charities as they face unprecedented challenges.

Research

Please take this new NF survey for adults!

You are being invited to participate in an anonymous online survey to help researchers design psychosocial trials for adults with neurofibromatosis. We also have some important questions on how the current coronavirus pandemic is affecting you.

Event Highlight

Camp New Friends Goes Virtual

Camp New Friends offers children and teens with neurofibromatosis (ages 7-17) seven days and six nights of summer fun and social connections. While this session is moving online, Camp New Friends will be nothing like the virtual classrooms you are used to attending!

People Spotlight

Long-Term Friendship and “Giving” Pennies

Staci Lewis and Carrie Wylie have carried their friendship online for several years after both of their children’s diagnoses with NF1. After an MRI for her son brought her to Memphis, TN, the Lewis family finally met their friend Carrie and had a little surprise of their own to share.


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