From the Network

House Appropriations Committee passes $15 million for NF Research

House Appropriations Committee passes $15 million for NF Research

In The News

Gov. Charlie Baker declares May NF Awareness Month

On May 1 Massachusetts Governor Charlie Baker and Lieutenant Governor Karyn Polito signed a proclamation officially declaring May Neurofibromatosis Awareness Month.


Confronting the Challenge of Neurofibromatosis

Neurofibromatosis as a name encompasses at least three diseases in fact. They are called neurofibromatosis type one, neurofibromatosis type two, and Schwannomatosis.

Event Highlight

Stone Lotus plays at Inaugural Docs Rock for NF concert

On a warm Saturday evening in early June at the Orlando Shakespeare Theater, more than 125 people gathered for the inaugural Docs Rock for NF concert

People Spotlight

Living with NF1: Jeff Colatruglio

My name is Jeff Colatruglio, I am 32 years old and this is my life.

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