Family, videography key for teen battling rare disease
Alex Leisenring, a high school senior, dreams of one day becoming a videographer.
Study finds key risk factor for severe NF1 symptoms
Research led by Ludwine Messiaen, professor of genetics at the University of Alabama at Birmingham, found a key risk factor for severe symptoms of NF1.
Concert raises NF awareness, funds
Rock Out to Knock Out NF 2.0, NF North Central’s second annual concert fundraiser, brought in more than $55,000 this past November.
Advocating for NF research — 30 years and counting
Karen Peluso became involved with the NF community when her daughter Mia underwent surgery to remove a very large and destructive plexiform tumor in her abdomen caused by NF1.