Vanderbilt Studying Reading Challenges in NF1

Author: Laurie E. Cutting, Ph.D., Principal Investigator

Published On: 09/13/2022

Researchers at the Education and Brain Sciences Research Lab at Vanderbilt University are seeking to understand challenges our NF community faces in reading comprehension and new ways to teach reading-related skills. 

What will be involved?

• Comprehensive evaluation of reading-related skills at Vanderbilt University 
• 4 Magnetic Resonance Imaging (MRI) scans of the brain 
• Parent and teacher questionnaires 

If you or your child meets our study criteria for having problems with reading, you or your child may be invited to participate. Participants with NF will be randomly assigned to one of two different groups. 

• Reading tutoring program and a medication called Lovastatin 
• Reading tutoring program and no Lovastatin (placebo)
  • Lovastatin is not approved by the Food and Drug Administration for the treatment of reading trouble due to Neurofibromatosis Type 1. 

What will you receive for participating?

• Travel reimbursement available for NF-1 families living outside middle TN area 
• Check for $150 for the first visit, $750 for the second visit, and $150 for the last visit. 
• Report of child’s performance on assessment measures (if first visit is completed)

For more information, contact the Education and Brain Sciences Research Lab by calling (615) 875-5534 or emailing educationbrain@vanderbilt.edu.