Challenges in the Transition From Pediatric to Adult Healthcare Faced by Patients With NF1
Author: NF Network, Roundtable and White Paper Participants
Published On: 01/27/2025

For many young adults with NF1, moving from pediatric to adult care is a big transition - one that often comes with challenges. Finding an NF specialist, navigating insurance, and keeping up with treatments can be complicated without the right support.
An expert roundtable brought together patients, doctors, and advocates who know these challenges firsthand - and explored what needs to change, from better care coordination to stronger provider connections, to make this transition smoother.
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