Transformative Support on Austin's Journey

Author: Food and Drug Administration

Published On: 11/05/25

The NF Network's Impact on Austin's Journey is something we are proud to share. Below is a story from Austin's father, David, providing details of their experience.

The support we received from the NF Network was truly life-changing during a time when we needed help the most. Our only family vehicle had completely broken down, bills were piling up, and after years of managing Austin’s complex medical journey, our finances were utterly depleted. We had been doing everything possible to keep up with his care, but it felt increasingly impossible to stretch any further.

Just as Austin’s chemotherapy was concluding, we received the incredible news that the clinical trial at WashU, which had been prepared for him, was approved. This trial offered a real chance at bone healing after years of failed surgeries and ongoing pain. While this news brought us hope, it also filled us with anxiety about how we would manage everything—financially, logistically, and emotionally.

It was during this critical moment that the NF Network stepped in to help us. They referred us to B the Difference, which provided a dedicated cooling system for Austin’s new medication—an essential piece of equipment that made it possible for him to begin his clinical trial safely. This support arrived at just the right time, restoring a sense of stability and hope when we felt overwhelmed.

The NF Network’s contribution was not just about the referral; it represented the kindness and compassion of people who truly care. Their intervention lifted an enormous weight off our shoulders, reminding us that we are not alone during these challenging times. The support they provided made it possible for Austin to pursue this vital treatment option.

We are profoundly grateful to the NF Network for their unwavering support and belief in Austin’s future. Because of their assistance, he now has a fighting chance—and perhaps, so will others in similar situations.

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