Raise NF Awareness on Rare Disease Day

Author: NF Network, Breanna Bronowski-Stutsman

Published On: 02/25/2022

It is estimated that there are over 300 million people living with rare diseases around the globe. Among those 300 million, over 130,000 Americans alone are living with neurofibromatosis. Neurofibromatosis (NF) is a rare genetic disorder that affects 1 in every 2,500 births and, in the simplest terms, causes tumors to form on nerve endings anywhere in the body.

Rare Disease Day is a global day of observation recognizing and raising awareness for the thousands of rare diseases and disorders that occur around the world. Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year. Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse ­­­— but united in purpose.

Join the NF Network in raising awareness about neurofibromatosis as we continue to educate members of our NF community and beyond, as well as fight for better treatments and a cure to end NF.

Learn more about the NF Network mission here, and sign up to stay iNFormed on the latest NF news and updates here.