"IQVIA, a healthcare research firm, is currently conducting a research project with patients aged 18 years or older who have been diagnosed with neurofibromatosis type 1 (NF1) with plexiform neurofibromas and who are experiencing pain associated with their plexiform neurofibromas. The research will involve participating in a telephone interview lasting 75 to 90 minutes. In appreciation of your time, we are offering a $150 honorarium through Intercash (pre-paid debit card).

The research will focus on understanding your experiences with NF1 and plexiform neurofibromas, particularly the symptoms you have experienced over time and the impact those symptoms have on your daily life. Additionally, we would like your input on a questionnaire designed to evaluate pain associated with plexiform neurofibromas in patients with NF1. This research may help to improve how the patient experience is accounted for in clinical trials for new treatments.

The study is strictly for research purposes; there will be absolutely no sales or promotional activities.

If you are interested, please go to this link.

Please email Kim Kelly at kkelly2@us.imshealth.com if you have any questions. Many thanks in advance for your time and consideration!"