Making a Difference Together: What Would Finding a Cure for NF Mean to You?

Author: NF Network

Published On: 11/24/2022

Year after year, we’ve seen firsthand how advancements in NF research have progressed by leaps and bounds. Through these monumental milestones like the first ever FDA-approved treatment for neurofibromatosis and promising clinical trials coming down the pipeline, you have continued to share your kindness and generosity with the Neurofibromatosis Network. Your support has allowed us to continue our important mission-related initiatives and serve the growing NF community. We are still here because of you. THANK YOU!

Each year, the NF Network serves over 10,000 NF friends and supporters of the NF cause and connects with over 1,200 new NF families. You have allowed us to help hundreds of newly diagnosed NF families and individuals by providing them educational materials, referrals to NF clinics and specialists, and connecting them with other local support. The NF Network is also able to provide direct, personalized support through the NF Heartline. The NF Heartline is a hotline designed to share individualized insight through outlets available to us at the NF Network.

In addition to our continued programs and resources, the NF Network has embraced the return to live events and continues to offer online opportunities to connect with NF families around the world. 

Since 1996, the NF Network Advocacy Program has played a vital role in securing over $402M in federal research funding for NF. While we were unable to travel in-person to deliver our message to Congress, over80 advocates from across the country conducted their congressional meetings from home and educated over 265 offices on the importance of these funds.   

We have continued to be here for you, and we thank you for being here for us. Your support on Giving Tuesday, November 29th, and throughout the end of the year will help ensure that we will still be here when the next NF family calls.

In 2021, you helped us go above and beyond our original goal of $10,000 by raising $33,263. This year, our goal remains the same – to raise $10,000 by the end of the year to be ready to serve the 1,600 new families that will receive their diagnosis of NF in 2023. As times have changed, you have continued to support the NF Network and helped ensure families in our NF communities are able to receive the support we offer. YOUR commitment has made a difference in the lives of thousands.

We need your help now more than ever. Together, we can continue making a difference in the lives of new NF families that reach out for help in 2023. We THANK YOU for ensuring our future and allowing us to continue providing essential support and resources to our NF community. 

We hope you will join us in supporting the NF Network again this Giving Tuesday!