$25M Secured for Continued Federal Funding of NF Research

Author: NF Network
Published On: 03/28/2024

Thanks to your advocacy efforts, we are pleased to announce that $25 million in federal funding has been SECURED for the Congressionally Directed Medical Research Program - Neurofibromatosis Research Program (CDMRP-NFRP) for Fiscal Year (FY) 2024. The House passed the bill and the Senate is expected to vote on the FY24 spending bill soon, before sending the package to the President for his signature.

THANK YOU for your continued advocacy efforts and your support of the NF Network Advocacy Program. Together, with your help, we are able to continue educating Congress on the importance of these federal research dollars for neurofibromatosis and help accelerate the search for treatments and a cure to end NF.

In February, approximately 100 NF advocates participating in the NF Network Advocacy Program met with over 200+ congressional offices and shared our stories, successes, and fiscal year request for 2025. While this milestone finalizes last year's FY24 NF research request, we will need your voice in the near future for this year's FY25 request when the Dear Colleague letters begin circulating.

Advocates participating in this program have been the voice of the NF community on Capitol Hill for over 20 years and have been instrumental in generating over $400 million dedicated to NF research.

Your contributions help ensure that we can continue fighting and advocating for better treatments and a cure to end neurofibromatosis. We thank you for your continued support, and we celebrate with you in this success! We did it!


Learn more about the NF Network Advocacy Program here.

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