Jeff Leibow shares personal mission
Jeff Leibow recently appeared on Good Morning Washington to raise awareness for neurofibromatosis.
Drug shrinks pediatric neural tumors
In an early-phase clinical trial, in most cases, children with neurofibromatosis type 1 and plexiform neurofibromas responded with tumor shrinkage.
Portraits and pasta
Members of the NF Central Plains community joined a crowd at the Kansas City Artists’ Coalition gallery for a special exhibit entitled “Portrait of a Disorder: Neurofibromatosis.”
Contributing to health care reform
Beverly Oberlander, a patient advocate for Neurofibromatosis California, recently participated in a roundtable discussion on health care reform with U.S. Representative Pete Aguilar.