From the Network

2017 NF Advocacy Program

2017 NF Advocacy Program

The NF Network Advocacy Program stomped the halls of congress February 5 through 7.

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Donec commodo.

In The News

Jeff Leibow shares personal mission

Jeff Leibow recently appeared on Good Morning Washington to raise awareness for neurofibromatosis.

Research

Drug shrinks pediatric neural tumors

In an early-phase clinical trial, in most cases, children with neurofibromatosis type 1 and plexiform neurofibromas responded with tumor shrinkage.

Event Highlight

Rare disease day

The 10th annual International Rare Disease Day at the University of Minnesota brought together researchers and patient advocate groups.

People Spotlight

Contributing to health care reform

Beverly Oberlander, a patient advocate for Neurofibromatosis California, recently participated in a roundtable discussion on health care reform with U.S. Representative Pete Aguilar.

Newsletter

Sign up to receive the latest neurofibromatosis news and information in your inbox!

Subscribe

Categories

Have a story you'd like to share with the NF community? Click Here!