From the Network

My NF compass: Aunt Flora

My NF compass: Aunt Flora

Cheri Stewart, president of the Neurofibromatosis Network, shares inspirational comments.

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In The News

Jeff Leibow shares personal mission

Jeff Leibow recently appeared on Good Morning Washington to raise awareness for neurofibromatosis.

Research

Drug shrinks pediatric neural tumors

In an early-phase clinical trial, in most cases, children with neurofibromatosis type 1 and plexiform neurofibromas responded with tumor shrinkage.

Event Highlight

Portraits and pasta

Members of the NF Central Plains community joined a crowd at the Kansas City Artists’ Coalition gallery for a special exhibit entitled “Portrait of a Disorder: Neurofibromatosis.”

People Spotlight

Contributing to health care reform

Beverly Oberlander, a patient advocate for Neurofibromatosis California, recently participated in a roundtable discussion on health care reform with U.S. Representative Pete Aguilar.

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