From the Network

Your voices and stories were heard in DC!

Your voices and stories were heard in DC!

In The News

SketchNF: My Colorful Life with Neurofibromatosis

In an effort to spread joy and awareness on neurofibromatosis to children and young adults with NF, SketchNF has created a coloring book that illustrates several real stories. Each book purchased allows SketchNF to donate 2 books back to over 30 clinics across the country.

Research

University of Minnesota's Patient Perspective Study for Adults with NF1

Researchers at the University of Minnesota are conducting qualitative study to better understand experiences of families in terms of accessing or receiving treatments for behavioral health concerns. Learn more and see if you qualify.

Event Highlight

Coffee for a Cause: The ScullyCoffee4NF Fan Fundraiser

Since 2017, fans of the actress and the TV series The X-Files have organized and implemented a social media-based fundraiser for the NF Network inspired by Gillian Anderson's iconic role as Dana Scully and Anderson's generous spirit.

People Spotlight

Meet Sam Leary Award Recipient, Whitney!

Sam Leary was a close friend, a loving son, and a strong advocate for NF research - advocating for himself and the thousands living with NF. In his memory, in partnership with his mother Karen, we are proud to honor his life with the continuation of the Sam Leary Advocacy Scholarship Fund. Meet this year's recipient, Whitney.


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