Jeff Leibow shares personal mission
Jeff Leibow recently appeared on Good Morning Washington to raise awareness for neurofibromatosis.
Drug shrinks pediatric neural tumors
In an early-phase clinical trial, in most cases, children with neurofibromatosis type 1 and plexiform neurofibromas responded with tumor shrinkage.
Rare disease day
The 10th annual International Rare Disease Day at the University of Minnesota brought together researchers and patient advocate groups.
Contributing to health care reform
Beverly Oberlander, a patient advocate for Neurofibromatosis California, recently participated in a roundtable discussion on health care reform with U.S. Representative Pete Aguilar.