Neurofibromatosis Parent Panel - Day of iNFormation
During the final presentation for NF Central Plains Virtual Day of iNFormation 2020, Dr. Keely Fitzgerald, Kaymee Phillips, Linda Yew, and Sharon Loftspring answer your questions about neurofibromatosis and share their insight as parents to children with NF. Hear their journeys, stories, and experiences with their children and patients.
Clinical Trials from a Pharmaceutical's Perspective
Dr. Uche Iloeje, Vice President of Medical Affairs at SpringWorks Therapeutics, presents on the subject of clinical trials during NF Central Plain's Virtual Day of iNFormation. Dr. Iloeje specifically highlights what clinical trials are, what SpringWorks Therapeutics is currently working on, and what trials are available for neurofibromatosis patients.
Pain Management Strategies for Those with NF
NF Central Plains' Virtual Day of iNFormation 2020 continued with a presentation from Dr. Frank Buono on the subject of pain management. Dr. Buono explains what chronic pain is and how our NF community can cope with their chronic pain, both from a clinical standpoint and from other alternative-based approaches.
Use of Service Dogs in Neurofibromatosis
During their second presentation of NF Central Plains' Virtual Day of iNFormation, John and Linda Manth continue to share their experience with service dogs. Dasher has positively impacted their life and the life of Leah, and John and Linda are excited to share their journey to get Dasher and how service dogs can also be of benefit to the NF community in general.
Breakthroughs in NF2 Research - NF2 BioSolutions
John and Linda Manth led their first of two Virtual Day of iNFormation 2020 presentations. John and Linda begin by sharing their journey with NF2 and their inspiration behind their work - their daughter Leah. The dynamic duo then shares how they got involved with NF2 BioSolutions and what "advocating for a cure" means in the science community.
Clinical Challenges and Advancements in PNs & MPNSTs
NF Central Plains' Virtual Day of iNFormation begins with a warm welcome from members of our NF community before Dr. Angela Hirbe shares an overview of NF, how patients are diagnosed, what plexiform neurofibromas and malignant peripheral nerve-sheath tumors (MPNSTs) are, and the exciting research and newly approved treatments for these tumors.