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Neurofibromatosis Network

Leading NF Advocacy
Building NF Community



Welcome NF friends and runners!

Thank you for your interest in joining us as we run to raise awareness and generate funds to support more than 125,000 people living with neurofibromatosis in the US alone.

Combining your own network of friends, family, associates, and local community with ours will add fuel to our efforts and allow us to, “Go Farther, Faster” in our efforts to find a cure for neurofibromatosis.


Register to Run4NF in Two Easy Steps

1) Select a Race

          Click a race from the list below, or choose your own event and register through the official event website! 

2) Email RUN4NF: 

          Let us know that you want to help spread awareness and raise funds for support and research. We'll help you set-up an online fundraising page, add your event to our list below, and promote your event on our website, through social media and e-blasts.


Upcoming Races

Create NF Awareness

Another important part that your sideline supporters can do to raise NF awareness is by wearing a Run4NF t-shirt at your next running event. T-shirts are available for $10 or racing singlets are available for $30. They can also be earned by creating your own fundraising page and raising $100 for t-shirts and $250 for singlets. Pictures of you at your event are also appreciated by us! Pictures of your in your Run4NF gear help keep the NF community encouraged and reminds them that people are out there on their behalf trying to do more. Please email pictures and your story to Ashley so that we can share your accomplishments on social media and continue to build awareness!


Fundraising Facts:

Did you know:

          95.4 percent of Americans participate at some level of charitable giving. 

          Total giving to charitable organizations was $410.02 billion in 2017. 

          The average annual household charitable contribution is $2,974.

          Online giving increased 23% in 2017, after 15% growth in 2016. 


Contact Ashley Sola at or (630)510-1115 with questions or for more information.