"Join Dr. Paul Moots, Dr. Vanessa Merker, and the NF Network as they explore clinical trials and discuss how you can contribute from home to help shape the future of neurofibromatosis (NF). Paul Moots, M.D. Resources available for people with neurofibromatosis to find research opportunities near and far from home This talk will highlight ways to lower the barriers to participating in research "

"Dr. Green is a physician-scientist and a child psychiatrist who works primarily with children with known genetic conditions and “neurogenetic syndromes” such as Noonan syndrome and other Rasopathies. Her presentation focuses on neurodevelopmental conditions in NF1. Dr. Green covers the presentation of these conditions in the context of NF1, findings from recent studies in NF1, and approaches to treatment. "

"John and Linda Manth led their first of two Virtual Day of iNFormation 2020 presentations. John and Linda begin by sharing their journey with NF2 and their inspiration behind their work - their daughter Leah. The dynamic duo then shares how they got involved with NF2 BioSolutions and what "advocating for a cure" means in the science community."

"When parents first hear the word "neurofibromatosis," thousands of thoughts and questions begin to race through their heads. As parents of the NF community, our panelists bring together different backgrounds of NF. Whether you are an NF2 parent, a multi-generational NF parent, or an NF1 parent, these parents will share their journeys, challenges, and insight to their worlds of NF. "

"Dr. Wilson reviews the types of benign nerve sheath tumors, namely schwannomas and neurofibromas. Learn more about your condition, when to be worried about your tumors, and the surgical options available for your treatment. Dr. Wilson's insight is from a surgeon’s perspective, with a focus on the challenges that are present in making decisions with patients who have multiple tumors."

"Bullying has become an epidemic. In this webinar, Corrina Chang, M.S., CCC/SLP and founder of Kids First Speech and Language Intervention, discusses bullying versus teasing. She also discusses the tools and the resources she uses with her school-aged and adolescent patients. Corrina shares her own personal experience regarding bullying and how it shaped her to the person she is today."

"Dr. Kaleb Yohay, Associate Professor of Neurology and Pediatrics and Director of the Comprehensive NF Center at NYU Langone Health, discusses a number of “lifehacks;” tips, tricks and ideas that he has learned from working with the NF community over the last 20 years. For a transcription of this webinar, contact the NF Network at 630-510-1115 or admin@nfnetwork.org."