Neurofibromatosis Educational Meeting

Virtual Zoom Meeting
Tuesday, May 20, 2025
7 pm CT

 Join Dr. Thomas J. Wilson for a presentation on his Project Dream grant, which focuses on identifying pain sources in individuals with Neurofibromatosis/Schwannomatosis. Afterward, we will discuss how to participate in clinical research and promote wellness in your NF journey.

New Imaging Method for Identifying Pain Sources  
Presented by Thomas J. Wilson, MD, MPH, FAANS

Pain is a common issue for those with LZTR1, SMARCB1, and other forms of schwannomatosis. Targeted therapies, such as surgical removal of pain-causing schwannomas or nerve blocks, can alleviate discomfort. However, identifying which schwannomas are pain-generating is crucial yet challenging due to multiple tumors being present. Accurate diagnostics are urgently needed to distinguish these tumors, optimizing pain management and minimizing unnecessary surgeries. Dr. Wilson will share updates on research into a new imaging technique aimed at improving pain source identification.

Dr. Thomas J. Wilson earned his MD with distinction from the University of Nebraska and completed his residency at the University of Michigan, followed by a fellowship at the Mayo Clinic. He currently serves as a Clinical Associate Professor at Stanford University, focusing on nerve outcomes, clinical trials, and advanced imaging techniques.

Overcoming Barriers to Research Participation  
Presented by Dr. Paul Moots

Dr. Paul Moots, M.D., President of the Board of NF Tennessee, will discuss ways to lower barriers to research participation. With 34 years of experience, he has been an investigator in 38 clinical trials focused on gliomas and nervous system tumors.

Navigating Stress and Cultivating Wellness 
Presented by Mike Sager

Mike Sager, Patient Education Manager at Alexion Pharmaceuticals, will explore stress triggers and management techniques.

The event is free, but RSVP is required.

Thank you to our sponsor