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Neurofibromatosis Network

Leading NF Advocacy
Building NF Community

Journey in Focus: A Retreat for Patients with NF1

Malvern | PA

Hosted by NF Northeast

Saturday, March 28, 2026
8:00 AM – 4:00 PM

The Desmond Hotel Malvern
1 Liberty Blvd, Malvern, PA

What Is Journey in Focus?

A one-day retreat designed to support individuals and families affected by Neurofibromatosis Type 1 (NF1) through education, connection, and shared experience. The program centers patient and care-partner voices and provides practical tools, meaningful dialogue, and opportunities to build community.

Click the link below for program highlights and the registration link.

Learn More