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Neurofibromatosis Network

Leading NF Advocacy
Building NF Community

Cleveland Clinic Neurofibromatosis 2017

Cleveland | OH

Attend this Cleveland Clinic Health Talk program!


Health Talks at the Cleveland Clinic. Public Health education seminars featuring Cleveland Clinic physicians and medical experts. Free! Check-in begins one-half hour before each program.


Title:Neurofibromatosis 2017

Day(s) of Week:Sunday



Times:8:30am - 2:45pm

Location:Cleveland Clinic Administrative Campus Bldg #3

To register:Call 216/444-3641

Register Now!

Speakers & Topics

What's New in NF1 Including Current Clinical Trials
Glen H. Stevens, DO, PhD
Neurological Institute
Taussig Cancer Institute

Optic Pathway Gliomas: Clinical Features, Current Management and the Importance of Measuring Vision
Michael J. Fisher, MD
Chief, Section of Neuro-Oncology
Director, Neurofibromatosis Program
Director, Neuro-Oncology Fellowship Program
Associate Professor of Pediatrics
Center for Childhood Cancer Research and Division of Oncology
Children's Hospital of Philadelphia

Segmental (Localised) NF1
A. David Rothner, MD
Pediatric Neurology
Neurological Institute
Cleveland Clinic

NF1 - Patient's Perspective
Jeanne Shewchik, RN
Data Resource Management
Cleveland Clinic

Orthopaedic Issues in NF1
David Gurd
Orthopaedic Surgery
Pediatric Institute
Cleveland Clinic

Plexiform Neurofibromas: Overview, Management and Current Clinical Trials
Michael J. Fisher, MD
Question and Answers
Full Panel
Moderator: Manikum Moodley, MD, FRCP
Pediatric Neurology
Neurological Institute
Cleveland Clinic

Lunch on Your Own

Managing with Learning Disabilities/ADHD and Other Psychosocial Aspects of Neurofibromatosis
Michael Manos, PhD
Menatalla Ads, PhD Center for Pediatric Behavioral Health
Children's Hopsital for Rehabilitation
Cleveland Clinic

The Eye in NF
Arun Singh, MD
Cole Eye Institute
Cleveland Clinic

How Does Neurofibromatosis Affect Your Skin
Joan Tamburro, DO
Dermatology and Plastic Surgery Institute
Cleveland Clinic

Genetics of NF1
Lauren Palange, MS, LGC
Genetic Counselor
Center for Personalized Genetic Health Care
Genomic Medicine Institute
Cleveland Clinic


More information at