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Neurofibromatosis Network

Leading NF Advocacy
Building NF Community

Children's National: NF Family Day

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2021 Neurofibromatosis Family Day 
A virtual event to support children and families with NF 

Saturday, September 18th 
9:30 am – 12:00 pm 


The Gilbert Family Neurofibromatosis Institute at Children’s National Hospital is hosting a virtual learning event to support children and families with Neurofibromatosis (NF). To register please visit:

Children’s National clinicians and researchers will present the latest information on a variety of NF topics. Presentations will include topics such as:

  • Common questions and concerns related to sleep, learning and pain management 
  • Overview of current research studies that you and your family may be interested in 

Participants will be able to engage with presenters and ask questions. All families of children with NF are invited to participate. Presentations will be recorded and available if you are unable to attend. Reserve your spot here.  

Questions? Please contact Kaitlyn Tiplady, PhD at or 202-476-6633.