Free Virtual Webinar
Addressing Barriers to Care for People with NF1
Leveraging Online Resources to Partner with Your Local Primary Care Doctor
📅 Wednesday, August 19
🕖 7:00 PM Central
💻 Free Virtual Webinar
Access to knowledgeable NF care isn't always easy—but new tools and resources are helping bridge the gap.
Join us for this free educational webinar to learn how people with NF1 can work more effectively with their local primary care doctors and discover new opportunities to improve care through research and online resources.
Featured Speakers
Dr. Vanessa Merker
Dr. Merker will discuss the healthcare disparities many adults with NF1 face and share findings from her research aimed at improving access to high-quality care. She'll introduce educational resources developed in partnership with people with NF1 and physicians to help primary care providers better understand NF1 care guidelines, and explain how these resources have positively impacted patient care. She'll also highlight exciting new research on educational videos, peer navigators, and ways adults with NF1 can participate in these ongoing studies.
Dr. Paul Moots
Dr. Moots will explore participation in NF research, including how many people in the NF community take part in research studies and clinical trials, and how participation compares with other medical conditions. He'll discuss common barriers to participation, the capacity of patient registries, observational studies, and clinical trials, and why increasing community involvement is essential to advancing future treatments and improving care.
Whether you're living with NF1, caring for someone who is, or simply interested in the latest advances in NF research and care, this webinar offers valuable insights and practical resources you can use today.
Register today and join us for this free virtual event!
