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Neurofibromatosis Network

Leading NF Advocacy
Building NF Community

AdventHealth for Children NF Symposium

Orlando | FL

Come join AdventHealth for Children for the 11th Annual Neurofibromatosis Symposium!

Saturday, June 1st

Main Event Orlando

9:00 am - 1:00 pm.

´╗┐This is a completely cost-free event (including parking), with activities for both parents and children. Using a provided game pass, children can enjoy arcade games and bowling, while parents receive an in-depth education on:

  • Navigating School and Learning Concerns for Children with NF, by Dr Michael Westerveld
  • Identifying and Addressing Behavioral Challenges, by Dr. Tricia Phillip-Magee
  • MEK Inhibitor Treatment for Plexiform Neurofibromas, by Dr. Fouad Hajjar
  • Neurosurgical Interventions, by Caroline Breska, PA
  • Picture Perfect Program, by Licensed Child Life Specialist

We will be providing breakfast, a snack, and lunch to all who will be participating. Once the adult education is complete, they will receive an hour-long game pass to join the kids in arcade and bowling fun.


*NOTE FOR CHILDREN WITH SENSORY SENSITIVITY AND SEIZURE DISORDERS: Main Event may have excessive stimulation due to flashing lights and game noises.